Jenny's Story: My Life with Crouzon Syndrome

What is Crouzon Syndrome?

What is Craniosynostosis?

What is Hydrocephalus?

Growing Up with Crouzon Syndrome

Being an Adult with Crouzon Syndrome

Being a Mother with Crouzon Syndrome

And Baby Makes Three!

Dealing with Unexpected Crouzon Syndrome

The Team of Doctors

My Children's Operations

Photo Gallery

Helping Your Child to Cope with Teasing

Links Page

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 God Sent to Me an Angel

Praise be to God

Jenny's Inspirational Sayings

Jenny's Inspirational Sayings II

The Secret of Success

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My Children's Operations

 Melissa:

bulletPosterior Cranial Vault Expansion at 9 months - February 2002
bulletBifrontal Orbital Advancement at 18 months - November 2002
bulletDelta Hallux Surgery at 3 years - May 2004
bulletRepair of Dura and Cranioplasty at 3 1/2 years - November 2004
bulletInsertion of a VP Shunt at 3 1/2 years - December 2004
bulletRemoval of Tonsils and Adenoids at 4 years - October 2005
bulletGrommets at 6 years - July 2007

 

Nicholas:

bulletFrontal Orbital Advancement at 8 months - November 2004
bulletInsertion of a PICC Line at 8 months - November 2004
bulletInsertion of a VP Shunt at 12 months - February 2005
bulletRevision of blocked VP Shunt at 15 months - June 2005
bulletSuspicion that the VP Shunt had blocked again at 18 months - September 2005
bulletInsertion of a ICP probe, and then revision of blocked VP Shunt at 2 years 4 months - June and July 2006
bulletPosterior Cranial Vault Expansion at 2 years 7 months - October, 2006