Jenny's Story: My Life with Crouzon Syndrome
Growing Up with Crouzon Syndrome
Being an Adult with Crouzon Syndrome
Being a Mother with Crouzon Syndrome
Dealing with Unexpected Crouzon Syndrome
Helping Your Child to Cope with Teasing
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Jenny's Inspirational Sayings II
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Children who have Crouzon Syndrome are referred to a hospital or clinic that deals with craniofacial conditions. Surgery for Crouzon Syndrome is a specialised field and needs to be done by qualified and experienced doctors. You may initially see the plastic surgeon or you may go to a clinic where all specialists are present. Seeing the plastic surgeon on his own is less daunting by not be possible. Looking after the needs of children with Crouzon Syndrome is a team approach. The team generally consists of the:
 | Plastic surgeon |
| Neurosurgeon |
| Speech therapist |
| Geneticist |
| Opthamologist |
| Dental surgeon |
| Counsellor/social worker |
Other specialists my children see are:
| Occupational therapist |
| Developmental pediatrician |
| General pediatrician |
| Orthopedic surgeon |
| Physiotherapist |
| Audiology |
| Respiratory clinic |