Stories From Other Families
Home Up About Sagittal Common Questions

 

Knowing that you are not alone and that other families have gone through surgeries for sagittal synostosis (and related conditions) is of great relief to most parents.

Below are links to homepages, mainly from parents who have contacted us, and like ourselves, set up their own web resources.

If you have your own homepage, or would like to suggest a link, please fill out this form.

There are several Bulletin Boards (places for people to post questions and comments) with more stories.

Our Craniosynostosis Website a family's detailed experience with craniosysnostosis, including many photos
Tanner's Story lots of details and photos of this family's experiences
Blake's Craniosynostosis Page details and photos of this family's experiences with links to other families' stories
Welcome Brynne a family's story with other cranio links
Jesse William Girrell's Thank You Page one family's experiences with metopic synostosis
Noquisi73's Page has genealogoy links and Cherokee information
 

 

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