We are not doctors nor are we other medical professionals. We are the parents of two children who have undergone surgery for this rare condition. We have spoken and corresponded with hundreds of other parents since August 1997 and have found that exchanging experiences with each other has been very helpful. We will provide our phone number to you if you e-mail us at sagittal@oocities.com. We encourage you to contact a reputable pediatric neurosurgeon and perform additional research before making the decision of whether or not to operate.