PITY II logo and contact information: PITY II, Stanley Community Centre, County Road, Walton, Liverpool, UK. Tel: +44 (0)151 285 0016. email: pity2uk@yahoo.co.uk

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Some of the images associated with the organ retention issues at Alder Hey Hopsital in Liverpool, UK

 
Link to Alan Milburn's [Secretary of State for Health] Speech to the House of Commons [UK Government] on the 30th of January 2001

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animated presentation of the words "Never Again!"

ROC Meeting with PITY II

Professor Margaret Brazier of the Retained Organs Commission (picture courtesy of ROC website)Steve Catling of the Retained Organs Commission (picture courtesy of ROC website)Steve Catling and Professor Margo Brazier met with PITY II committee at our office on Thursday 25th April 2002.

The meeting started at 6.00pm.

The Consultation Document on 'Unclaimed and Unidentifiable Organs and Tissue and A Possible Regulatory Framework' (more) was discussed and it was stated that they had tried to include as many issues as possible that had been put forward by numerous groups and individuals over a period of time.

The question of DNA testing was discussed. No further information was available at this time but we were assured that we would be kept informed of any future progress on this issue.

RE: European Study of Foetal Pathology. PITY II first brought this subject to the attention of ROC at the end of last year. Steve Catling has stated that ROC's investigations into this are still continuing but they have not yet reached a definitive point. They will let us know when they have something to report.

A workshop to discuss legal reform was to be held on 30th April 2002. This, we were informed, was for members of the legal profession only. We reiterated that legal reform was a subject that we felt very strongly about and that we had been promised input into any future legislation. We asked why parent representatives had not been invited even if it was only as observers. It was explained that this particular workshop was to obtain the views of the legal profession, as they would be the ones having to implement the reforms.

We believe that a consultation document on law reform will be issued in the near future and had hoped that the Department of Health would be organising consultation workshops for families of the deceased involved in organ retention to feed their views into.

ROC has agreed that if the Department of Health does not arrange a workshop then ROC will organise one.

Our next meeting with the ROC will probably be early September. This is taking into account the intervening holiday period.

 

 

PITY II (Parents who have Interred Their Young Twice) is the parents' support group set up in the wake of the organ retention scandal
at Alder Hey Hospital (Liverpool, UK). It aims to provide self help support and advice to affected families.


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