Shelly's daughter Jordan was born on November 1st, 1997. She had early feeding difficulties and severe reflux, she was diagnosed in March with Failure to Thrive weighing less than her birth weight. An eye exam in May revealed that Jordan has Infantile Batten Disease.










Jordan is their first daughter, she is on a g-tube now, and has been gaining weight, at 8 months she weighs 10 pounds and is gaining.




She is the light of their lives, They hope and pray there will be a cure someday for this disease.












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