Donna's son Connor is 10 months old. He has Carenters Syndrome, a very rare genetic disorder. His cranial plates are fused and he was born with a split penis which has been repaired. He also has hydrosephulaus, w/ a vp shunt. He was born with a heart murmer which sealed on his own. Also slight webbing of fngers on left hand and extra big toe bones on both feet. He has his second cranal reconstucion at Johns Hopkins on June 17. They live near Washington DC.



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