LISTS AND LINKS

Please send along other useful links as you discover them.

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There is an excellent list for mantle cell in existence, often frequented by oncologists. To subscribe, send a message to listserv@ucsd.edu. Leave the subject line blank (on AOL, put in a hyphen). In the body of the message, put ADD YOUREMAIL MANTLECELL. Substitute your e-mail address for YOUREMAIL.


If you would like to follow the announcements regarding the latest research for low grade lymphomas, Ben Haines' list is the place to be. It is often useful for the higher grades as well.

To subscribe: send an empty message to nhllow-subscribe@egroups.com. Or you can follow the messages from the archives: go to egroups.com and do a search, then enter the nhllow list.

To unsubscribe: send an empty message to nhllow-unsubscribe@egroups.com.


For those interested in alternatives and complementary treatments, there is a NHL list for discussing them and sharing experiences. To subscribe, send an empty message to nhl-info-subscribe@egroups.com


The oldest NHL list is run by Scott Pollock, and was created for all lymphoma types. This list does not have a rule against chit chat and has a very high message load. It can be of particular use to people going thru treatments or a health crisis and needing a lot of support. To subscribe, send a message to nhl-request@jubjub.wizard.com. The subject line should say SUBSCRIBE. The body of the message should read SUBSCRIBE TO NHL LIST.



eyesite.ucsd.edu/~mcl

This is the only site currently dedicated to mantle cell. It is run by Dr David Granet, whose father died from mantle cell lymphoma. David focuses on gathering information from oncologists who have a particular expertise in MCL. Unfortunately, the site has not been added to for some time. You will also find information there on how to join the mantle cell support list.



alumnus.caltech.edu/~mike/nhl/types/mantle.html

A comprehensive page on MCL, with links to other resources. The whole site, developed by Mike Barela, a Hodgkin's Disease survivor, is a great resource for people with any kind of lymphoma. It is updated frequently.



www.chron.com/content/chronicle/special/vinyl/index.html

This web page documents the story of PVC toxicity and a possible link to mantle cell lymphoma, following the disease of a man who worked in the PVC industry.


alumnus.caltech.edu/~mike/nhl/types/mantle.html

This is a new patient site.

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Gathered by Vera Bradova © 1999, 2000
Updated 1-15-2000
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