Facing Huntington's Disease - A Book for Family and Friends

http://neuro-chief-e.mgh.harvard.edu/mcmenemy/facinghd.html

An excellent resource is a new book called Faces of Huntington's by Carmen Leal-Pock.

This site also has many HD and related links. http://ddi.digital.net/~promo/faces.html

Another website with a lot of excellent information on HD, research and links to other

sites

plus has a forum for HD messages, chats and exchange of information is

The Mass. General Hospital (MGH) http://neurosurgery.mgh.harvard.edu/other2.htm

"Chat" with others. Go to the  Harvard Neurological chat room set up specifically for

HD.

http://neuro-www3.mgh.harvard.edu/interaction$/chat/huntington?id=4553932

If you have America On Line (AOL) you can post messages on their Better Health board

under Brain & Injuries Disorders, Huntington's Chorea.  AOL also has a HD Chat

group

that meets every Thursday night from 10 to 11PM Eastern Standard Time in their

PENN

Conference Room. AOL was one of the original sites to offer a place for people

searching

for information on HD found their way therethrough this resource.

Huntington's Disease Information

http://www.lib.uchicago.edu/~rd13/hd/outside.html

Huntington's Disease (HD) Information on the Internet

http://ivory.lm.com/~mccarren/

Hereditary Disease Foundation

http://www.hdfoundation.org/testing.htm

Huntington's Disease Society of America

http://neuro-www2.mgh.harvard.edu/hdsa/hdsamain.nclk

Genetic Testing Information and US HD Testing Sites

http://neuro-www2.mgh.harvard.edu/hdsa/genetictesting.nclk

Huntington Society of Canada

http://www.hsc-ca.org/"

International Huntington's Association

http://www1.tip.nl/~t216038/homepa~1.htm

Huntington's Disease Message Board

http://neuro-www.mgh.harvard.edu/forum/HuntingtonsDiseaseMenu.html

Mailing List for Huntington's Disease (Hunt-Dis)

Instructions for subscribing to the electronic discussion group for Huntington's Disease.

http://www.lib.uchicago.edu/~rd13/hd/mailing.html

Caring for People with Huntington's Disease

http://www.kumc.edu/hospital/huntingtons

The HD Lighthouse

http://table.jps.net/cgi-bin/cgiwrap/wuf/toc

A concise helpful summary of basics from KU Medical Center Neurology department.

http://www.kumc.edu/instruction/medicine/neurology/hd.html

Advisory Committee on Genetic Testing

http://www.scicomm.org.uk/biosis/acgt/ACGT0.html/

Baylor College of Medicine

http://www.bcm.tmc.edu/neurol/struct/als/als6d.html

A Physician's Guide to the Management of Huntington's Disease

http://neuro-www2.mgh.harvard.edu/hdsa/catalog.nclk#generalinfo

The Unified Huntington's Disease Rating Scale

http://www.micronet.fr/~mondor/scores.htm

Young People with HD

http://members.aol.com/julieloui

Rob Laycock's Home Page

http://www.interlog.com/~rlaycock/2nd.html

Shauna's Home Page

http://members.aol.com/GymnastM/home.html

Kym's Home Page

http://www.oocities.org/HotSprings/Spa/1059

Shirley's Home Page

http://www.softdisk.com/comp/shirley/

Lou's Page

http://calgary.shaw.wave.ca/~dwilkins/lou.htm

Noel and Carolyn Crowson's HD homepage

http://www.angelfire.com/al/leonc/

The Hackerson's Home Page

http://www.hackers.demon.co.uk/hd.html

InteliHealth

http://www.intelihealth.com

Elder Law & Legal Resources

http://www.seniorlaw.com/resource.htm

MedicationsMedications Information Site

http://www.aofm.com/Meds/meds.htm

RxList--The Internet drug index

http://www.rxlist.com/

Mental Health Website

http://www.mentalhealth.com

Dementia Web

http://dementia.ion.ucl.ac.uk/Dementia Web

Disability Resources on the Internet

http://disability.com/cool.html

Family Caregiver Alliance

http://www.caregiver.org

Coping With Caring

http://home.sprynet.com/sprynet/eldercare/

A Year to Remember...with My Mother and Alzheimer's Disease

http://fly.hiwaay.net/~bparris

And He Will Give You Rest

http://www.ixpres.com/jlcopen