Youth Section

The Huntington's Scene In New Zealand

Site Maintained by
Graham Taylor

Site Resources available from the Homepage
NZ HD Diagnosis, Care & Support Key Site Resources Research Newsletters Books	About Huntingtons Disease HD Resources About the Associations Youth

Youth

Huntingtons In My Family ....A story told by Jenny Taylor (17yrs) about her HD family

The Courage To Go On ....A story told by Sara Duncan (14yrs) about her HD father and how she feels about HD.

The Juvenile HD Caregivers Club (USA)
Has been opened up on Yahoo. You can join this discussion list at http://clubs.yahoo.com/clubs/juvenilehdcaregiverclub
    This list is for all family members of a child with JHD to meet and discuss the special needs involved with raising and caring for a child with Huntington's Disease.It is hoped that, here, we can support each other in finding ways to help our child maintain a good quality of life and ways to help our child maintain a good quality of life and to retain the dignity and respect that they deserve through the exchange of information, ideas and suggestions based on our collective experience.
    It is hoped this list will just be used to discuss any and all issues relating to Juvenile Huntington's Disease.
This site also has the capability to establish a live chat at the bottom of the page. Ask others to join you there when you want an immediate interchange
Speaking Out-Living With HD (USA)    http://clix.to/speakingou A Very moving and touching portrayal of how the devastation of Huntington's Disease affects the lives of our young children and adults living with the disease through a Question and Answer format.
Juvenile Huntington's Adam Duncan's Website(New Zealand).
http://juvenilehuntingtons.org.nz/