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Guestbook Archive May 31 2007 |
|
Name
: Becky |
Your
email address : macandtosh626@yahoo.com |
Comments
: Very good site. |
|
Name
: Kathy Ciociola |
Your
email address : ciociola@rci.rutgers.edu |
Comments
: Well done, Rebecca! |
|
Name
: Mary-Ann Baron |
Your
email address : studio48@westman.wave.ca |
Comments
: I was glad to see this site as my
duaghter has just been diagonised with En,it will help us understand
the condition and hopefully there will be a cure for it, thanks so much
|
|
Name
: Carrie B |
Your
email address : cbar1971@yahoo.ca |
Comments
: Hi Rebecca!!! WOW ...awesome site!!!
:-) Keep smiling! Carrie |
|
Name
: Nadine |
Your
email address : teachna@hotmail.com |
Comments
: I was recently diagnosed with EN. I
woke up one morning with painful shins like someone kicked me. It
progressed rapidly over the next few days into my elbow and top of
right foot. My doctor doesnt have much info for me. In fact he had to
check his books |
|
Name
: R.Bauer |
Your
email address : rcbauer1614@comcast.net |
Comments
: Just trying to get information about
Sarcoids. Dr. seems to think that I have it. I am doing research on the
internet. Any info you can send my way would be great. Thank you and
God Bless. Renee |
|
Name
: |
Your
email address : potaroo7@mail2world.com |
Comments
: Hi Rebecca, just stopping by to see how
you are all doing. Im still in remission and seem to have developed a
technique to stay that way. Regards, John from Canberra and
Sarcoidbuddies |
|
Name
: Heather |
Your
email address : isc7833@yahoo.com |
Comments
: Rebecca, i want to thank-you for taking
the time to start this group and help others like me who know so
little..as i tell my children its not what happens that matters its how
we respond to it that makes all the difference! |
|
Name
: Rebecca |
Your
email address : rebeccastrecker@yahoo.com
|
Comments
: Hi Everyone, Please help raise money
for the Erythema Nodosum Research Fund by searching the Internet with
GoodSearch: http://www.goodsearch.com/ Thank you! |
|
First
Name : heather lee |
URL
: |
Comments
: I discovered EN in 1999 had it in 2003
and started now again and would like find out more |
|
First
Name : Sarah |
URL
: haras737@hotmail.com |
Comments
: Im glad to find this site. It is kind
of hard to navigate. I must say when I read some of the others say they
have had this for years I wanted to cry. You see I am a welder and I
have to stand for 8 to 10 hours for 5 or 6 days a week. The swelling of
my f |
|
First
Name : Rebecca |
URL
:
http://health.groups.yahoo.com/group/erythema_nodosum_Group/
|
Comments
: Hi Everyone! For daily updates, join
our EN group. Need help signing up? email me and Ill add you to our
1100+ members. Love, Rebecca rebeccastrecker@yahoo.com |
|
First
Name : jaime |
URL
: jparana014@yahoo.com |
Comments
: i just wanted to say to anyone that has
EN if you are not a part of the group then you should join. i have had
EN for almost two months and have not been a part of this group for
long. But you should join because joining this group has made me feel
alot b |
|
First
Name : Angelica |
URL
:
http://www.dirsys.info/tinkerbell-tattoos/ |
Comments
: very nice site and guestbooks but
please give more regular updating |
|
First
Name : Kolette |
URL
: kolette@telus.com |
Comments
: sorry, didnt leave my address last time
|
|
First
Name : Kolette |
URL
: |
Comments
: I was dianosed with EN 4 weeks ago,
caused from strep throat and was told that the EN would last from 2- 6
weeks. Thank you for this wonderful website. What I am learning from
reading others comments though, is that this disease does not go away.
Am I cor |
|
First
Name : Dot |
URL
: angiep200@yahoo.com |
Comments
: I just read your story Rebbeca,i am
also a member of your club,and i have the same thing you have,thank you
for starting this for all of us that have this, |
|
First
Name : Pamela |
URL
: Pamyalkire@yahoo.com |
Comments
: |
|
First
Name : Betty |
URL
: mydogszoe@yahoo.com |
Comments
: I am so happy so find a website that
hopefully can help my daughter find the right treatment for her
erythema nodosum. |
|
First
Name : Sabrina |
URL
: |
Comments
: hi there I was looking around and it is
great that there are other people like me. I noticed EN back in Sept
2000 and I have been getting them since. Once in the winter and once is
the summer. I sucks so much. Mine are getting worse though now they are
c |
|
First
Name : Ann |
URL
: annw1952@yahoo.co.uk |
Comments
: Thanks, I really enjoyed reading your
web page. Like yourself I havent met anyone who has this condition or
even knows how to treat it. I was brushed aside by my G.P. (in all
fairness they didnt know what to do with me)and no one believes how bad
it gets. |
|
First
Name : Genny |
URL
: mcneigh@cs.com |
Comments
: wow!EN is allien to me. Butvasculitis
an PG (pyodermal gangrenosum) hhave presently ecome far too Familiar.
This is my first attempt to start some research. hopeto be back , in
tghe mentime my thoughts and prayerswill be with all of
you........gen... |
|
First
Name : susan |
URL
: susan-cinik@yahoo.com |
Comments
: \am asufferrer of en and sarcodosis and
would love to talk with some other people with the same please email me
|
|
First
Name : susan |
URL
: susan-cinik@yahoo.com |
Comments
: \am asufferrer of en and sarcodosis and
would love to talk with some other people with the same please email me
|
|
First
Name : Amber |
URL
: coolbeaner48166@yahoo.com |
Comments
: Hi my name is Amber I am 24 years old
and was just diagnosed with erythema nodosum, systimatic with what we
found out was a even bigger nightmare I also have sarcoidosis and IBS.
I would love to talk to someone. I have done research about all three
and wo |
|
First
Name : lisa |
URL
: snuggiesnuggie@yahoo co.uk |
Comments
: Thank goodness to be able to understand
what my friend is going through. Hes a male in his very early 40s. |
|
First
Name : laurie |
URL
: lajohn@peoplepc.com |
Comments
: I am having trouble signong up with a
pass work thru Yahoo..I have EN and I want some info please Thank you
Lala |
|
First
Name : Bee |
URL
: beeluke@iprimus.com.au |
Comments
: Your site and the en group brought a
tear to my eye as i have suffered with en for 14 years with no one
understanding and no cure, as its not a common disease, nice to know
there is support out there, feel free to email me to talk, |
|
First
Name : sonja |
URL
: sonjawoodruff@yahoo.com |
Comments
: |
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First
Name : sonja |
URL
: mrsangel@in-motion.net |
Comments
: |
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First
Name : sonja |
URL
: |
Comments
: I have EN for 2years. But are there
other problems could be involved. Like chest pain, charlie horses in
heels, pimples in hairline, upper resp distress, and double vision, and
dirrahea I am at my witts end. would appreaciate any information. Im
starting |
|
First
Name : ann rickard |
URL
: |
Comments
: could you please write to me at my e
mail address morgandayspring@icehouse.net-it would be great to talk to
someone who knows what im going through ann |
|
First
Name : annie Rickard |
URL
: daizeydarby@yahoo.com |
Comments
: I get the bruises on my arms legs(upper
and lower) and ocasionally on my stomach and butt. nice to know im not
the only one |
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First
Name : diane |
URL
: luckettslydi@yahoo.com |
Comments
: Your site is not ready? |
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First
Name : Diane |
URL
: luckettslydi@yahoo.com |
Comments
: I want to join the group, but my old
alternative email has been closed. Would someone contact me at
luckettslydi@yahoo.com? |
|
First
Name : Anmarie |
URL
: annie03442@yahoo.com |
Comments
: I am SO glad that I found your web
page. I hope to communicate with you & other members ref: EN
and PG. PG is the nasty beast that I battle. God Bless & Good
health! |
|
First
Name : Miss Tsang |
URL
: |
Comments
: I have lots of very small what looks
like bruises all over my legs, theyre not lumpy or sore but my doctor
is certain that it is EN. My legs used to swell up really badly too,
has anyone else experienced this? Im really scared theyll never fade,
has anyon |
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First
Name : Julie |
URL
: McUmberJA@aol.com |
Comments
: After 3+ years of doctors telling me
they did notknow what was wrong with my legs I stopped going to them. I
did a lot od research on the net and found out this is what has been my
problem! Thanks for the info! |
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First
Name : Kathy |
URL
: Kwflwr@aol.com |
Comments
: 7 weeks ago diagnosed with EN and we
believe the trigger was celebrex after process of elimination-am
healing well and was not aware it was such a serious and possibly
life-long condition. After prednisone which made me ill my MD put me on
steroid cream-- |
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First
Name : Janice |
URL
: happypio@aol.com |
Comments
: Hello Rebecca, Thank you so much for
starting this site. I have been suffering for 2 yrs with EN. Its hard
to explain to others. I knew of no one else with EN until now. I signed
up to join your group. Looking forward to future chats. |
|
First
Name : benjamin |
URL
: |
Comments
: This site is very helpful. |
|
First
Name : Jim |
URL
:
http://Vasculitisofthecns@yahoogroups.com |
Comments
: Very, very good and informative.
Excellent Job!!! |
|
First
Name : Gail |
URL
: ghanna273@aol.com |
Comments
: I am a member of the Polyarteritis
Nodosa group. Ed Becker is the owner and moderator. There are over 300
of us from all over the world. This is a fantastic group and how
wonderful to be able to converse with others who have PAN. Your
moderator has become |
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First
Name : Barb |
URL
: |
Comments
: Thank you. For the first time, I know
of someone else with EN. |
|
First
Name : Cobalt |
URL
: |
Comments
: {This might have to suffice for a
profile, as getting/having a Yahoo accuont doesnt mix well with my
webtv. It bogs down all over it and downright refuses other parts, so
Im currently the Owner of a Chat Messageboard site at Talkcity.com
called The MetaPh |
|
First
Name : em |
URL
: crohnshelp@yahoo.co.uk |
Comments
: Hi rebecca good luck with your site and
polls |
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First
Name : Heather Collins |
URL
: snckrs682000@yahoo.com |
Comments
: Good Job! I really hope this helps a
lot of people. EN is not a pleasant disease to deal with. Just knowing
there are people out there that we can talk to and lean on for support
when needed is a great feeling. |
|
First
Name : Frances |
URL
: frandanc@bellsouth.net |
Comments
: You did a great job in creating this
website and I am proud that you are my cousin. Some family! EH! and I
mean that in the nicest way! |
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First
Name : Claude Seligman |
URL
: sunset129@netzero.com |
Comments
: A very friendly and helpful site! I
hope you can reach more people with this...and maybe get better medical
research done as a result. |
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First
Name : Jeffrey S |
URL
: |
Comments
: Nice job |
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