Tourette Syndrome in NOT a
disease!!!!
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Hi my name is Dorene and this is my
friend Lisa. I have a child with Tourette Syndrome (TS). When
John was first diagnosed with TS in 1996, I did not know anything about it.
After searching the web, we found out that there are sites that are
informative, but unless you know what your looking for one could get lost.
Hopefully this site will help you find your answers and guide
you in the right direction.
Although there is a web site that is very informative and has
helped me, we decided to make our own website on TS for those who feel
like they are in the dark, feel they have no place to turn and even feel
alone through this. No one is ever alone...there is always someone out there
that either knows the answer, knows how |
you are feeling or is newly diagnosed,
looking for answers and needs our support.
We are here in hopes to help others out there dealing with
TS whether as an adult or a child, a friend, or a family member. Support
comes from everyone. Support is a big word and means a lot to those who need
it, a shoulder and even an ear is very important, everyone needs someone
for one reason or another. So that is our purpose of this site. To let you
know, "You are not alone." We hope to be here for you and give you
the support you need and are looking for. And by pulling together for each
other we can only hope we can find the answers to your questions and concerns.
We have even added "special" sites on here for the kids.
We wanted to have things for you, as far as information and support. But
we feel that the children should have something on here, just for them, as
well. These kids are "very" special people and are trying to deal with this
just like we are and if you would like to add your information, story or
link....just drop us a line.
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A note from Lisa
My name is Lisa I met Dorene almost 10 years ago now.
Not only have we become best friends, but a lot more like sisters. We have
always been there for each other. No matter who needed who, or for what reason,
we are always there for each other. Her boys are my life as well as hers.
I love them boys just as much as I love my own. There isn't anything in this
world I wouldn't do for her or her family. I moved from Ohio two years ago
(1998). I now live in Florida. We are just as close now as when we were just
a few miles away. Friendship and Family is the most important thing in the
world, always treasure those two things.
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| Although, I don't have a
child with TS, it does hit home because her sons are my "God-sons". I
can't say I know what she is going through, but as a mother as well, I can
only imagine the heartache she carries and deals with everyday. Her
son was diagnosed with TS back in 1996. Four years later she is finally
getting help and answers. She thought she didn't have any place to
turn,and I think she felt she was alone in this battle. Sure she took
him to Doctors, Psychiatrist, therapy etc...she was still in the dark up
until recently. She finally reached out for help from others dealing
with the same thing...off line as well as those online. As I stated above,
support is very important and she has my support..always. |
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A note from Dorene
Hi, this is Dorene, again. As Lisa said we met
almost 10 years ago. that night is a funny one. It was our first night
bowling on a league
and neither one of us had partners. So we teamed up with our husbands
and formed the "Mis-Fits". These "Mis-Fits" formed a better team then
on the bowling league. We became inseparable, sisters and even though
we are many miles apart we still feel that strong bond that only sisters
can feel. |
| When John was diagnosed with TS, my world
fell apart. I had an infant running around and a son that had something
I did not know about. I felt in the dark and often asked the question
"Why us?". If it were not for Lisa, I do not know where I would be
right now. She showed me that friends do count and that they do care.
They give loving support and encouragement when needed and step aside
when helpless. She is a friend who laughs with you, cries with you,
visits you and she even knows when your down. How she knows to call
just at the right time is beyond me, but if it were not for my best friend
and sister, Lisa...I don't know where I would be right now.
But she came home to Ohio and us and is right by my
side!!!!!
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Although we are still learning about
TS we want to make this the best informative and fun site for TS friends,
families and kids there is. There are also many sites out there about
TS that we want to make available to you that are Informative, support,
fun and just interesting.
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