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Name : Dorothy
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E-Mail : anster8@att.net
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From : Hawaii
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Age at Onset : ?
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Presenting Symptoms : physical weakness fatigue depression
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Worst Symptom : this awful fatigue
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Best Treatment : ?
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Your Comments : think we all are having the same problems, every day is interesting. Just want the old me back.
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Name : cheri
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E-Mail : cgabrielse@dccnet.com
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From : Vancouver, Canada
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Age at Onset : 31
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Presenting Symptoms : Numbness, fatigue, pain
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Worst Symptom : Sensation Overload
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Best Treatment : Apo-naproxen 500mg
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Your Comments : Crazy. . . but I would like to post questionnaire asking lifestyle/history questions - a laymans effort determine the cause of MS. Would you reply?
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Name : Peter Anderson
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E-Mail : peter@mswebpeople.com
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From : Melb/ Australia
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Age at Onset : 38
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Presenting Symptoms : Numb foot
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Worst Symptom : Vision Failing
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Best Treatment : None
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Your Comments : Home page: http://www.mswebpeople.com/
All welcome :)
Come and say GDay
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Name : Wendy
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E-Mail : thehouseofbirds@aol.com
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From : Virginia
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Age at Onset : 40
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Presenting Symptoms : bladder control,fatigue,emotional , internal heat, left side of my face and body numb and in painful, partial wheel chair and cane useage
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Worst Symptom : left leg and foot pain and retaining heat.
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Best Treatment : steroids
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Your Comments : I have overwhelming heat intolerance. I have trouble with the left side of my body.I have had MS for over 4 years now and was first told that I had lyme diease. I have cognative and emotional problems.
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Name : Sandi
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E-Mail : e-mail me
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From : Cedar Lake,In.
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Age at Onset : 37
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Presenting Symptoms : numbness in face, hands and limbs
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Worst Symptom : cramping in legs and feet
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Best Treatment : shared solutions.com exercise video & copaxone
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Your Comments : Finding a doctor that listened to me & would work with me. Until I found Dr. M. Prasad of Munster, In.,I began to believe my symptoms were all in my head. I have a MRI once a year/first being diagnosed with benign MS. You have to be completely honest with
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Name : Sandi
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E-Mail : E_Mail me
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From : Cedar Lake In.
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Age at Onset : 37
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Presenting Symptoms : numbness in limbs and hands & face
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Worst Symptom : leg&feet cramping
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Best Treatment : exercise video from shared solutions.com & copaxone
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Your Comments :
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Name : Sandi
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E-Mail : E-Mail me
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From : sgphillips_46@msn.com
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Age at Onset : 1991
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Presenting Symptoms : fatigue,numbness in hands &cramping in feet and legs
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Worst Symptom : feet & leg cramping
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Best Treatment : exercise video from shared solutions.com & using copaxone since march 03
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Your Comments : For me, finding a doctor that worked with me and listened. It took 5 until I found Dr. M. Prasad in Munster,In. My first diagnosis was benign MS. I have an MRI once a year. You must be totally honest with yourself & doctor if you want to live a more norma
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Name : Susie
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E-Mail : lbsm1999@yahoo.com
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From : Southern, California
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Age at Onset : 48
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Presenting Symptoms : spasms
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Worst Symptom : not WALKING
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Best Treatment : Amantadine
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Your Comments : This MS is crap in my book...I wish they hurry up and find a cure and I want to be alive when they do.........
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Name : neil
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E-Mail : adele.booth@tesco.net
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From : halifax
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Age at Onset : 23
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Presenting Symptoms : fatigue
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Worst Symptom : vestibular neuritis
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Best Treatment : steroids
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Your Comments : vestibular neuritis was orrile i couldnt move my head without getting dizzy and throwing up
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Name : Bill
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E-Mail : wacki56@aol.com
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From : St.Pete., Florida
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Age at Onset :
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Presenting Symptoms :
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Worst Symptom :
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Best Treatment :
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Your Comments : Great web site ! It deserves to be among the BEST . Please add your site to The Worlds Top Personal MS Web sites at :
http://new.topsitelists.com/world/wacki56/
wed love to have you , and ALL your contacts help spread the word . OH.........did I men
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Name : Susie
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E-Mail : lbsm1999@yahoo.com
|
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From : California
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Age at Onset : 26
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Presenting Symptoms : looking double in one eye
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Worst Symptom : spasms
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Best Treatment : Amantadine
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Your Comments : I have my ups and downs with this crap and hopefully Im around when they find a cure.
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Name : Ms. Suwan Limsumphan
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E-Mail : daengsuwan@hotmail.com
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From : Thailand
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Age at Onset : 41
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Presenting Symptoms : feeling leg stiff, fatigue,headache
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Worst Symptom : cannot walk, deceiving eyes,cannot raise hand
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Best Treatment : I am not sure the treatment from doctor because the doctors always provide the steroid medicine and it has many side effected to my health.
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Your Comments : Please help me to understand this disease and how I can get the better treatment.
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Name : Bonita M Quesinberry, R.C.
|
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E-Mail : unicornhaven@earthlink.net
|
|
From : Oregon
|
|
Age at Onset :
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Presenting Symptoms :
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Worst Symptom :
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Best Treatment : Herbal
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Your Comments : Oops. This doesnt allow many words. Please do come visit my website at http://www.oocities.org/pen_for_god. Hope to see you there.
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Name : Bonita M Quesinberry, R.C.
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E-Mail : unicornhaven@earthlink.net
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From : Oregon
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Age at Onset : 12+/-yo
|
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Presenting Symptoms : All
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|
Worst Symptom : Pain
|
|
Best Treatment : Herbal
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|
Your Comments : You have a great and informative website. MS, for me, is compounded by Lupus, Fibromyalgia, brain damage due to injury, degenerative vascular disease, and a host of other complications. But! While meds tended to escalate a downward spiral, herbs seem to k
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Name : kellie
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E-Mail : hellkell1@bigpond.com
|
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From : sydney,Australia
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Age at Onset : 41- suspect earlier? 35
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|
Presenting Symptoms : drag right leg,foot drop,numbness,bladder frequency,extreme fatigue,double vision,neuritis,severe depression,body weakness.terrible balance,cognitive and memory problems
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Worst Symptom : cant go on
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|
Best Treatment : terrified of side effects , Dr said nothing as yet depression too bad,may deepen that which is all consuming.
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Your Comments : I got diagnosed 3 weeks ago. I live alone and fight this battle pretty much alone. Found 9 lesions brain and spine, terrified. I have had 2 attacks in 10 months,first left my right foot and leg permanently damaged. I can walk very short distance before ex
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Name : Beth
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E-Mail :
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From : Virginia
|
|
Age at Onset : 30
|
|
Presenting Symptoms : Optic Neuritis
|
|
Worst Symptom : fatigue
|
|
Best Treatment : prayer-faith in God
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Your Comments : Mother of 4 children,homeschooler,teen ministry leader,,I only make it with Gods help-anyone can stay positive even with limited capabilities if you rely on the Lord!
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Name : Mindy Smith
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E-Mail : calliepayton@aol.com
|
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From : Tulsa, Ok
|
|
Age at Onset : 28
|
|
Presenting Symptoms : Neurogenic Bladder, numbness, fatigue, pain, hyper-reflexes
|
|
Worst Symptom : Neurogenic bladder and neuropathic pain
|
|
Best Treatment : Non Yet
|
|
Your Comments : I was recenlty diagnosed with Neurogenic bladder, bowel and demeylination disease. MRI all normal. This is frustrating. Please help
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Name : Kristina ALexander
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E-Mail : alxk228@datasync.com
|
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From : poplarville
|
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Age at Onset : 43
|
|
Presenting Symptoms :
|
|
Worst Symptom :
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|
Best Treatment :
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|
Your Comments : I was in a semi truck accident in Dec. 2002. In march 2003, I had an MRI done that show Lesions in my brain that the doctor is telling me is possible from MS. I know nothing about this condition. I really dont know what to do. I have another MRI, in June.
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Name : Mary Ward
|
|
E-Mail : maryward@austin.rr.com
|
|
From : Austin, Texas
|
|
Age at Onset : 30 something
|
|
Presenting Symptoms : Optic neuritis
|
|
Worst Symptom : blindness
|
|
Best Treatment : Being left alone!!!
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|
Your Comments : Well, Im not the MSer, my husband is. Weve been through a couple of Interferons and several Prednisolone treatments, all of which have reminded us that as bad as things are, you can get worse if you do the right thing and do what the doctors say. Just dis
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Name : Kara
|
|
E-Mail : kfoulk@yahoo.com
|
|
From : Ohio
|
|
Age at Onset : 23
|
|
Presenting Symptoms : heavy leg after working out
|
|
Worst Symptom : numbness in right leg (still have feeling though)
|
|
Best Treatment : none
|
|
Your Comments : Found out in University that I had MS. They thought it was a pinched nerve to begin with since I only had numbness in my rt leg and arm. A 2nd MRI and spinal tap confirmed my Doctors thoughts. At that time there were no medications to go on and he said th
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Name : jeff
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E-Mail : jfw@ellijay.com
|
|
From : self
|
|
Age at Onset : 35
|
|
Presenting Symptoms : fatigue,eyesite,pain
|
|
Worst Symptom : fatigue
|
|
Best Treatment : copaxone
|
|
Your Comments : pleae e-mail me and let me know more about your own situation PLEASE111111111111
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|
|
|
Name : Julie
|
|
E-Mail : SINGLEMOM3911@MSN.COM
|
|
From : DES MOINES
|
|
Age at Onset : 30
|
|
Presenting Symptoms : TINGLING IN LIMBS
|
|
Worst Symptom : FATIGUE
|
|
Best Treatment : COPAXONE
|
|
Your Comments :
|
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|
|
Name : Susan
|
|
E-Mail : aries31@bellsouth.net
|
|
From : Georgia
|
|
Age at Onset : 30
|
|
Presenting Symptoms : blurried vision, in Rt.eye, dragging Rt leg, numbness & tingling in all finger tips
|
|
Worst Symptom : Numbness & Pain in back and trunk area
|
|
Best Treatment : steroids
|
|
Your Comments : Lately it seems when one symptom gets better, another comes. It is scarey going to bed, and thinking what will tomorrow will be like?
|
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|
|
Name : Penny
|
|
E-Mail : sixcents@pennswood.net
|
|
From : Pennslvania
|
|
Age at Onset : 41
|
|
Presenting Symptoms : total body numbness, fatigue, cognitive problems
|
|
Worst Symptom : fatigue
|
|
Best Treatment : none yet
|
|
Your Comments : Have progressed to heavy limbs, cramping, burning, dizziness as well. I just want to know whats wrong and if I can be treated.
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|
|
Name : melody
|
|
E-Mail : prissy01@alltel.net
|
|
From : ohip
|
|
Age at Onset : dont know/und/x
|
|
Presenting Symptoms : numbness,fatiuge,memoryloss,blurred and double vision
|
|
Worst Symptom : fatiuge
|
|
Best Treatment : none yet
|
|
Your Comments : i have been ill going on two years cant get a d/x, have leisions, but spinal neg. it has cost me my job as i no longer can work or drive very often. very hard limbo land
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|
|
Name : S Brown
|
|
E-Mail : cartnrams@aol.com
|
|
From :
|
|
Age at Onset : 37
|
|
Presenting Symptoms : fatigue, unsteady gate
|
|
Worst Symptom : fatigue
|
|
Best Treatment : Rebif
|
|
Your Comments : Havent felt this good in two years after diagnosis! I started with Avonex, continued with relapses requiring IV treatments, paralysis, loss of vision, switched to Betaseron with same results. My neurologist offered Rebif after MRI, in only a six months pe
|
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|
|
Name : Eeva
|
|
E-Mail : skye98@luukku.com
|
|
From : Finland
|
|
Age at Onset : 32
|
|
Presenting Symptoms : walking difficulties,balace difficulties,bladder problems etc.
|
|
Worst Symptom : when I couldnt speak for 2 months
|
|
Best Treatment : betaferon
|
|
Your Comments :
|
|
|
|
Name : Michel
|
|
E-Mail : whatms@aol.com
|
|
From :
|
|
Age at Onset : 35
|
|
Presenting Symptoms : Numbness,tingling,disorienation,neurogenic bladder,atrophy
|
|
Worst Symptom : Disorientation,bladder,cognitive
|
|
Best Treatment : Betaseron,Swimming
|
|
Your Comments : Glen-What a great site. Well done and a great resource
|
|
|
|
Name : debbie
|
|
E-Mail : rabfamily@enter.net
|
|
From : usa pa
|
|
Age at Onset : 41
|
|
Presenting Symptoms : leg pain
|
|
Worst Symptom : cant walk
|
|
Best Treatment : avonex
|
|
Your Comments : i was just dx 15 months ago ..anybody that has infor .that can help me and my family please e-mail it to me .thank you debbie
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|
Name : Cari
|
|
E-Mail : Conger-Eldeen
|
|
From : Colorado
|
|
Age at Onset : 31
|
|
Presenting Symptoms : Optic Neuritis and fatigue
|
|
Worst Symptom : double vision and left side weakness
|
|
Best Treatment : Dont know yet
|
|
Your Comments : Finally diagnosed about 10 years and lots of tears. On Copaxone and feeling better. Still fighting the fatigue and looking for something that will work.
|
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|
Name : Peter Anderson
|
|
E-Mail : peter@mswebpeople.com
|
|
From : pa
|
|
Age at Onset : 39
|
|
Presenting Symptoms : Numbness in toes
|
|
Worst Symptom : Rapid Decline
|
|
Best Treatment : Ha !
|
|
Your Comments : Now classed as PP. Retired as a result of disability. Now reliant on a manual wheel chair.
I have recently changed my site (again !!) *lol* and found myself visiting yours again. I know how much work I put into http://www.mswebpeople.com, and I am amaz
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Name : \/inzą
|
|
E-Mail : spooge@spl.at
|
|
From : S California
|
|
Age at Onset : 39
|
|
Presenting Symptoms : Severe numbness of both hands
|
|
Worst Symptom : loss of bladder control, near paralysis of legs, bladder infections,
|
|
Best Treatment : Prednisol Intravenious, Gabapentin 300mg/ day, Avonex
|
|
Your Comments : I am treated by the Veterans Administration. World Claas Doctors. All medications provided. Presently finances are my greatest challenge. SSI is monsterous. I am unable to work.
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Name : Sheila
|
|
E-Mail : sullivan1948@earthlink.net
|
|
From : florida
|
|
Age at Onset : 54
|
|
Presenting Symptoms : numbness,weakness in legs
|
|
Worst Symptom : constant ache in legs
|
|
Best Treatment : rebif
|
|
Your Comments : Diagnosed is May 02. But I think that I have had it for several years
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|
Name : Jim
|
|
E-Mail : jim_bolton5@hotmail.com
|
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From : USA
|
|
Age at Onset : 25
|
|
Presenting Symptoms : numbness in legs, Optic Neuritis
|
|
Worst Symptom : difficulty walking
|
|
Best Treatment : Avonex & Prednisone
|
|
Your Comments : I was diagnosed with Multiple Sclerosis in 1993 while serving in the Army overseas. In 1997, my medical history caught up with me and my military career ended. http://clik.to/MSjim On this page, you will find many helpful links to learn more about MS and
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|
|
|
Name : Joanna Chism
|
|
E-Mail : rchism@hotmail.com
|
|
From :
|
|
Age at Onset : 20
|
|
Presenting Symptoms : opticneuritis
|
|
Worst Symptom : lack of balance
|
|
Best Treatment : fruit & vegitables
|
|
Your Comments : avoid colesterol& fat
|
|
|
|
Name : peter maroney
|
|
E-Mail : edpeter@netzero.net
|
|
From : 1980
|
|
Age at Onset : 30
|
|
Presenting Symptoms : numness
|
|
Worst Symptom : paralized from neck gown
|
|
Best Treatment : betaseron
|
|
Your Comments : i have been in a nursing home for 10 years. I guess you can learn to live under any conditions if you have to. You do what you have to.
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|
|
Name : Lynn
|
|
E-Mail : mspatient@adelphia.net
|
|
From : Cleveland
|
|
Age at Onset : 34
|
|
Presenting Symptoms : Lost most sight in right eye, went totaly blind for a week
|
|
Worst Symptom : Cant stand up dizy and in severe pain all mucles
|
|
Best Treatment : IV steroids
|
|
Your Comments : I'm 59 now and have been coping until now. I am having trouble with thought process, and rembering things. Speach at times. Lots of muscle pain. Arms go numb and hurt. Leg cramps etc... Have lost jobs and Insurance not, trying to survive, Disability state
|
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|
|
Name : Lynn
|
|
E-Mail : mspatient@adelphia.net
|
|
From : Cleveland
|
|
Age at Onset : 34
|
|
Presenting Symptoms : Lost most sight in right eye, went totaly blind for a week
|
|
Worst Symptom : Cant stand up dizy and in severe pain all mucles
|
|
Best Treatment : IV steroids
|
|
Your Comments : I'm 59 now and have been coping until now. I am having trouble with thought process, and rembering things. Speach at times. Lots of muscle pain. Arms go numb and hurt. Leg cramps etc...
|
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|
|
Name : Catherine Bond
|
|
E-Mail : the_bond68@hotmail.com
|
|
From : Maryland
|
|
Age at Onset : 40
|
|
Presenting Symptoms : unsure
|
|
Worst Symptom : unsure
|
|
Best Treatment : unsure
|
|
Your Comments : I am just learning about MS. I was adopted and I have learned that my maternal grandmother was diagnosed in 1964 with MS.Being that for 31 years I have had no medical history this was shocking for me to find out.I am trying to locate my birth family to le
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|
Name : LOUISE
|
|
E-Mail : lancaster@wol.co.za
|
|
From : KWAZULU NATAL SOUTH AFRICA
|
|
Age at Onset : 31
|
|
Presenting Symptoms : MEMORY LOSS, FATIGUE, BLADDER PROBLEMS AND MANY MORE
|
|
Worst Symptom : MEMORY LOSS
|
|
Best Treatment : REBIF
|
|
Your Comments : LIVE FOR TODAY, SIMPLIFY YOUR LIFE, SEEK INFORMATION, RELY ON GOOD FRIENDS, ALWAYS BE POSITIVE!!!!!!!!!!!!!!!
|
|
|
|
Name : Luis
|
|
E-Mail : lmn2gki@aol.com
|
|
From : Hoboken NJ USA
|
|
Age at Onset : 39 yers old
|
|
Presenting Symptoms : slurred speech, frequent falls
|
|
Worst Symptom : losing balance
|
|
Best Treatment : none---so far
|
|
Your Comments : 1946-47 poliovirus
1973 prob.MS
1976 def. MS
1990 chron.prog.MS
2000 post polio syndrome
Retired teacher of mathematics.
Having problems in concentrating and at the present time having much problem in walking less than 10' using a power wheelchair
|
|
|
|
Name : Erin
|
|
E-Mail : haloseve@aol.com
|
|
From : Boston, Ma
|
|
Age at Onset : 34
|
|
Presenting Symptoms : numbness in feet, fatigue, slurred speech
|
|
Worst Symptom : Fatigue!
|
|
Best Treatment : Looking at options now
|
|
Your Comments : What I find most frustrating is dealing with co-workers who look at me as if I'm smoking dope on the job lol. Sometimes in the afternoon I poop out and I talk slower or it takes me a second to register what people are saying to me. They are aware of my di
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|
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Name : Rhonda
|
|
E-Mail : rkearney@execulink.com
|
|
From : Ontario
|
|
Age at Onset : 36
|
|
Presenting Symptoms : numbness on left side to shoulder
|
|
Worst Symptom : same
|
|
Best Treatment : unknown
|
|
Your Comments : I've been perusing this site since July when the numbness started. It has since disappeared but the MRI showed four spots and I'm scared to death. I'm in Limboland and I can't say as I like it much. I have my first appt at the local MS Clinic in November
|
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|
Name : mihaela
|
|
E-Mail : mmirosanu2002@yahoo.com
|
|
From : romania
|
|
Age at Onset : 35
|
|
Presenting Symptoms : disorder
|
|
Worst Symptom :
|
|
Best Treatment : Betaferon
|
|
Your Comments :
|
|
|
|
Name : jan wolfgang doerffel
|
|
E-Mail : jan@jandoerffel.de
|
|
From : germany
|
|
Age at Onset : 17
|
|
Presenting Symptoms : Blurry vision, Weakness, Vertigo, Tremor, Sleepyness
|
|
Worst Symptom : Bilateral chronic Optic Neuritis
|
|
Best Treatment : High-dose Dexametasone 1000mg daily i.V.
|
|
Your Comments : This is a great and important site on the web for MSers.
Unfortunately we don't have a thing like that in germany :-))
Greetings from Jan
http://www.jandoerffel.de
|
|
|
|
Name : hester
|
|
E-Mail : h.holmes@sympatio.ca
|
|
From : hester holmes
|
|
Age at Onset : around 50
|
|
Presenting Symptoms : leg weakness
|
|
Worst Symptom : hard to walk
|
|
Best Treatment : none
|
|
Your Comments : I have just turned 60 and the Doctors say i have had m.s. for years. i have been having problems since i was 50 but the doctors could'nt find anything wrong with me and now i am trying to deal with this?
|
|
|
|
Name : wendy
|
|
E-Mail : ronnyreddz@yahoo.com
|
|
From : 2002
|
|
Age at Onset : 30+
|
|
Presenting Symptoms : have had weakness, tingling, memory loss, pain, many others . .
|
|
Worst Symptom : fatigue, slurred speech, cognitive functions
|
|
Best Treatment : exercise - good nutrition
|
|
Your Comments : Have not been diagnosed. Have been to two neorologists. Doctor says I am depressed. Antidepressants making tremors worse. Fatigue still present, worse. Memory loss and loss of muscle function in legs. I used to run four miles a day. Now some days I am luc |
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