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The Committee for Justice

and Recognition of Myalgic Encephalomyelitis

The History, Science and Politics Affecting Patients Disabled by M.E. around The Globe.

 

Myalgic Encephalomyelitis is a disease that causes pathology to the brain and multiple organs and systems, and has been classified as a disease of the nervous system by the World Health Assembly. (Recognized within the section of neurologic diseases that includes; encephalitis, meningitis, polioencephalitis, transverse myelitis, multiple sclerosis, motor neurone, poliomyelitis, Parkinsons, Huntingtons, epilepsy, Guillain-Barre, brainstem compression, hydrocephalus, muscular dystrophy, cerebrovascular disease, demyelinating diseases, Paraneoplastic encephalopathy, Toxic encephalopathy, radiation myelopathy: diseases often caused by viruses, bacteria or toxins).  In contrast to these examples, since of the recent worldwide epidemic, M.E. has become the most common chronic disease of the Central Nervous System. Even so, this disease is virtually unknown to the public and rare to find a doctor that can diagnose M.E.  

 

Welcome to the TCJRME headquarters

 

The Committee is an international patient based association dedicated to promoting Justice for the victims of Myalgic Encephalomyelitis; and we are dedicated to achieve the full public Recognition of the dangers of this worldwide disease epidemic. We will demand that the national health agencies of all governments admit that Myalgic Encephalomyelitis is a serious disease and an increasing worldwide health disaster.

Toward that end The Committee will disclose the truth about the disease and history of myalgic encephalomyelitis. We will present the medical facts about ME, and examine the politics and motivations that have led to the public health agencies’ mismanagement of, and dishonest response to this disease epidemic.

To advance the goals of Justice and Recognition of ME, the Committee will promote patient advocacy efforts and support patient campaigns that demand the end to the programs of delay and deception. We will promote efforts that demand that the national health agencies support an urgent and vigorous investigation into the causes and cures for this devastating epidemic. The greater concern for the public worldwide is that the outbreaks of ME continue, the numbers affected are growing and the epidemic spread may only be at its beginning.

The Committee supports educational efforts toward the recognition that Myalgic Encephalomyelitis is a complex multi-systemic disease, producing neurological and metabolic dysfunctions. ME is a devastating disease from which few recover, and results in a large number of people permanently disabled.

ME outbreaks and sporadic disease has been documented for many decades. ME appeared most commonly during local polio outbreaks, and at a high rate among hospital personnel. At onset ME resembles polio, and for many years was considered a variant of polio and classified as Atypical poliomyelitis.

Although Myalgic Encephalomyelitis had been reported in the medical journals many times over the past century it was considered a rare disease. Despite this profile, during the 1980’s ME exploded into an alarming worldwide epidemic. For example during the last 20 years ME progressed from a rare disease to now claim over a million victims in the USA alone.

Upon this background of alarming community outbreaks, pleas from doctors, a contagious pattern and an expanding epidemic spread, the government health agencies did not act in a straightforward manner to determine the nature, cause, and extent of the epidemic, nor to alert and protect the public.

As the leading example, in the USA, the Centers for Disease Control (CDC) is the agency entrusted to actively investigate precisely this type of major health hazard. Rather than fulfilling its mandate, for some reason, the CDC abandoned their duty and proceeded to avoid its investigation. They then proceeded to develop and implement policies designed to disguise the disease, and confuse the medical community and the public. The centerpiece of this program of confusion and distraction was forged by changing the name of ME to CFS, interpreted by all as an innocuous, unexplainable fatigue condition. This instantly cut off the disease from its history and prior medical investigations and reports. Replacing knowledge with ignorance.

These actions rendered doctors ignorant of the history and the established neurological infectious nature of this epidemic disease. This new name distracted doctors and the research investigators with a major effort that proclaimed a “new illness” and focused all attention on fatigue. These policies of concealment even go so far as to advise doctors not to investigate patients for the infectious causes. Many other governments immediately followed the same model. These policies have not diminished this epidemic, or protected the public, or sought to determine the cause of this disease. These policies reveal a clear pattern of malfeasance and disregard for the public’s health.

Our evaluation brings us to the clear conclusion that the greatest problem patients face in receiving proper health care has more to do with the politics surrounding this disease than the difficulties or the complexities of medical science.

We believe it is also our duty to alert the general public that this devastating disease epidemic shows no sign of ending, which means that all our fellow citizens are at risk to be its next victim. Therefore we will promote patient and public understanding of ME, and demand that the national health agencies end the policies and practices of deliberate roadblocks, distraction and dishonesty. These policies have had enormous consequences and continue to extract a tragic toll.

Many people have died from Myalgic Encephalomyelitis and there are now millions disabled by this epidemic. It is time to put an end to the cover-up of this epidemic.

We encourage patients from all countries to work together to end this epidemic! Protect Yourselves. Learn about your disease. Educate your doctors. Alert your fellow citizens to the dangers.

 

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Protect Yourself - Learn About M.E. - Educate Your Doctors - Alert The Public

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Explore our Current Topics and Medical Library

Our Current Topics pages should prove a valuable resource for patients and all those concerned with the struggle to advance progress against this disease epidemic. Real advancement in this struggle will require public awareness and support, and patients will be further empowered by learning the true history of ME and by gaining perspective of the appalling political dynamics surrounding our disease. Patients, physicians and the public can discover much of the essential reality of ME by reading the Epidemics page.

The Medical Fundamentals section contains many important scientific and medical reports regarding the Diagnosis, Neurology, Metabolism, Research, relationship to Polio and more. An excellent introduction for your doctors.

Many more pages are being prepared for display. We are interested in your comments, ideas, suggestions and questions so please contact The Committee.

 

 

Current Topics

 

Recent Epidemics;  http://www.oocities.org/tcjrme/CurrentTopics3.html

   Why are the Epidemics so important – The Epidemic Context

A Public Statement;  http://www.oocities.org/tcjrme/CurrentTopics4.html

   To Government Health Ministers and an ALERT to citizens worldwide

The Definitions;  http://www.oocities.org/tcjrme/CurrentTopics2.html

   What is ME and what it is not

Updates;  http://www.oocities.org/tcjrme/CurrentTopics5.html  

    Developments - Political Concerns - Controversies -    

 

 

The Medical Science

 

Open The ME Medical Library -  basic science for Doctors and Patients

The Fundamentals of M.E.;  http://www.oocities.org/tcjrme/fundamentals.html

The Diagnostic Protocol,  Neurology,  Metabolism,  Immunology,  History,  Medical Research,  Similarities to Poliomyelitis

Learning about Myalgic Encephalomyelitis  -  The Core Curriculum

Including: Supplemental Articles, Recommended Books – ME Experts Report  -

List of Resources - Research groups – Recognition of Medical Scientists

 

 

The History, Science and Politics Affecting Patients Disabled by M.E. Around The Globe.

 

 

The Committee for Justice

and Recognition of Myalgic Encephalomyelitis

 

Send your Concerns, Comments and Ideas to: TCJRME@yahoo.com

 

 

Protect Yourself  -  Learn About M.E.  -  Educate Your Doctors  -  Alert The Public

 

 

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** From Rare Disease to Worldwide Epidemic **

ME/CFS represents a major world health and economic threat second only to AIDS

What are the dangers to you and your families – 

 Learn more of the  Epidemic Explosion and comments by the Experts; http://www.oocities.org/tcjrme/CurrentTopics3.html

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Millions Disabled by Myalgic Encephalomyelitis

Many Names have been used at different times -

Atypical Poliomyelitis  - Iceland Disease  - Non-paralytic Poliomyelitis  -  Royal Free Encephalomyelitis  -  Epidemic Neuromyasthenia  -  Epidemic Diencephalomyelitis  -  Infectious Venulitis  -  Tapanui Flu  - Chronic Epstein-Barr Virus  -  Post Viral Syndrome  -  Gulf War Syndrome  -  Myo-encephalopathy  -  Saudi Flu  -  Chronic Fatigue Immune Dysfunction Syndrome  -  Vegetative Vascular Dystonia  -  Poliomyelitis-like Disease  -  Adult Acquired Autism  -  NK Cell Dysfunction  -  RNaseL Enzyme Dysfunction  -  Chronic Encephalomyelitis  -

For decades this disease is most accurately defined and best understood as Myalgic Encephalomyelitis 

 

Myalgic Encephalomyelitis is a Complex Disease

ME can be very similar to, or must be differentiated from other conditions such as:

Multiple Sclerosis  -  Parkinson’s  -  Systemic Lupus Erythematosus  -  Tropical Spastic Pareparesis  -  Guillain-Barre  -  Neuro Behcets disease  -  Addisons Disease  -  Sarcoidosis  -  Huntington’s  -  Amyotrophic Lateral Sclerosis/Motor Neurone  -  Encephalitis Lethargica  -  Polymyositis  -  Hypothyroidism  -  Lymphoma  -  Brucellosis  -   

Learn more – visit the Medical Library;  http://www.oocities.org/tcjrme/fundamentals.html

 

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  Protect Yourself  - Learn About M.E.  - Educate your Doctors - Alert the Public

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Myalgic Encephalomyelitis

International Classification of Diseases, (ICD 9, 323.9) (ICD 10, G 93.3)

 

  

 

 

TCJRME

Home Page   http://www.oocities.org/tcjrme

 

 

 

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