Our Faces Support Group

Based in Brisbane, Queensland, Australia

Welcome to Our Faces Support Group. We are currently a small support group based in Brisbane hoping to expand and have more people join us. The group was founded in 2004 by Joe and Jenny. Jenny and their two children have Crouzon Syndrome. The group was formed to enable contact with other families in similar situations. Anyone who has a craniofacial condition or facial difference is most welcome to join. It does not matter if the condition was from birth or acquired through illness, disease or accident. The aim of this group is to support, provide friendship and provide an avenue to share experiences. The group is also associated with the Mater Children's Hospital in Brisbane.

Jenny's Story: My Life with Crouzon Syndrome

 

For more information please email Jenny on:

ourfacesinfo@yahoo.com.au

crouzonsyndrome@yahoo.com.au