The HYCEPH-L is an unmoderated list for people with hydrocephalus, their friends and family members, health care professionals and anyone else with an interest in the condition. The purpose of the list is to share information and support in dealing with hydrocephalus.
To subscribe, send an e-mail message to listserv@lists.missouri.edu
and in the body of the message type:
subscribe HYCEPH-L Yourfirstname Yourlastname. When you subscribe, you will
receive an introductory note containing more information as well as useful commands. Then
you may post a message in the mailing list by send it to hyceph-l@listserv.utoronto.ca.The
list owner is Don Cook and you can contact him sending a message to dc13518@navix.net.
The hyceph-l mailing list has an official
homepage that you can visit.
I have no words to tell you how important this mailing list was for us! When the doctors told us that Mafalda have hydrocephalus we didn't know what it means. We didn't have any information and we didn't knew anyone with hydrocephalus. In the mailing list we found other people that have been in our shoes and knew what we were feeling. Talking with them and with people who has hydrocephalus since birth helped us a lot. So, if you're looking for information and support, the mailing list is a good place to start with.
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