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Tyler's Story | Immunisation | Early Intervention | Main Page

Dave - 12/08/00 06:24:28
My Email:dmoyer@telis.org

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I have been told that even bipolar disorder may be related to DPT immunizations. A nutritionist told me that either DPT or MMR shots have mercury in them. Some parents with MMR related autisium had the mercury taken out and their kids got better. Don't know of the validity of this, but I am leaving no stone unturned to get a family member over bipolar illness that may or not be related to DPT. Actions are being taken to remove the mercury which is a preservative from the shots.

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Thanks for letting me read your story i hope you are getting the necessary help you require.Your site has helped with an assignment on immunisations.

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THIS IS A COOL ASS PAGE!!

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Hi. I read your site about Tyler and I got some helpful information on immunisation for my assignment. I hope someone soon finds a cure for this disease. Bye.

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Thank you for the help on the report.

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Thank you for the help on the report.

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Dear Kathy and Richard What lovely pictures! I would never have guessed what touble your kids had been through. I was very saddened by Tylers story. It must have been soooo frustrating to know there was something wrong with him that nobody would acknowledge. Just goes to show h w unserved these kids are when compared with normal kids (talking here of the unwillingness to have him assessed for speech initially). It must have been heartbreaking to lose what you knew of him and joyful when little bits come back to you both. Goodluck

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Thank you for your wonderful and informative web page. I agonized over immunizations also. My uncle is paralyzed from the neck down with polio, and my friend has two Autistic children (due to DPT shots). I cried, but I did go ahead with the shots. Well, i turns out that all three of my children had a form of genetic deafness. It was a result of my husband and I both being part of the 8% of the population that carries a gene called Connexin 26. Go figure! Well, my heart goes out to you and family. At least your children were blessed to have wonderful, proactive parents. I am sure you also feel blessed to have your beautiful children, even if they are not perfect. Sometimes I wonder what might have been, but I would not trade my babies for anything. I think eing the mother of these Special kids has made me a better person, more caring, empathetic and compassionate. I am also tougher! Nothing and no one will scare me into silence. So fight the good fight and may God be with you! You know what is best for your children, so do your research, and get what you want for your children. I pray that you will get the right people to listen and to help you! Good Luck!!! Stephanie Virginia, USA

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Hello. My little boy is 13 weeks old and has had 2 vacinations already(his last one was just yesterday!)He definately was not his self after the last one. I have spent all of today hoping he will return to his old self!! I am already considering not vacin ting the MMR. I am disgusted that, while talking to a friend , I discovered the dangers and that while reading through the leaflet I picked up at the doctors it says ""IN 26 YEARS, 250 MILLION DOSES OF MMR HAVE BEEN GIVEN IN OVER 40 COUNTRIES. IT HAS AN EXCELLANT SAFETY RECORD."" what do they class as an "excellent safety record" what if my child is the child it affects? This statement must annoy the parents whos ch ldren have been affected as they are not being acknowleged. The leaflet also says "" GIVING THE VACCINES SEPERATELY MAY BE HARMFUL. IT LEAVES CHILDREN OPEN TO THE RISK OF CATCHING MEASLES MUMPS OR RUBELLA."" I know children who do have the vacination and who have caught measles or mumps anyway! I am not at all anti vaccine but I think we should be allowed all of the facts. I have a friend who has an autistic son (he was not vacinated) and she goes to all the conferences and she tells me that there are things that are discussed at these conferenc s about the effects of vaccines which will take years to be disclosed to the public.She would not have her children vacinated but for example should her daughter wish to get her children vacinated then she would be adament that they have the MMR seperate. Thank you very much for your webpages I dont know how you find the time. love to your children ****paula. ps I am in the U.K.

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G'Day What a wonderful site this is for two very precious children. I have truly been touched by your story. I have also learned a lot by being here as it really has so much information. Wishing you all the best. Please know that you are in my thoughts. Thankyo for sharing your story. Love Kiddos

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What a truly inspiration tylers parents are. I have 2 boys that have both been immunised and luckily they have so far had no side affects. Answering gina's email (cheesna) i am a teacher and i am always open to learning new things and i know that a lot o my colleagues agree. I know i am not an expert on most things and i always listen to parents as i think they know their chn best and quite often can offer help, solutions and knowledge so we can do the best by their chn. thankx for letting me share tylers story and good luck with your ongoing challenges..

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Tyler & Nerhys are blessed with just the right parents to meet their needs. Take care of each other.

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Hi Tyler, You're lucky to have such a great mom!

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Hi Karen and Richard: Your children are just beautiful and thanks for creating such a wonderful site! Mary Hill

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oh and 10, Don't expect officials to register adverse reactions to vaccination. Our son was fully supervised at the local children's hospital when he reacted and after 3 years of lobbying they still refuse to register him. Why ? because they recieve the argest funding for immunisation research in the country and they told us outright they don't want our son to screw up there stats. Benefits outway the risks sure they do when doc the figures.

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HI as the mother of these two beautiful children I often visit this site to read peoples comments. So bear with me as I address some of the issues continually raised by our visitors. 1. Abusive e mails are removed immediately by my husband we are caring sharing family and expect the same respect from others EVEN if they disagree with our position on vaccination. 2. We openly encourage everyone to send thought provoking material we are keen to encourage debate not stifle it. 3.I have noticed a number of people claiming to be officials of organisations in either the pro or anti vaccination area. Unless this person leaves a contact number, address or e mail, it is impossible to validate who they are and I encourage everyone to hink carefully about the response if a person cannot stand up for what they believe in then there material may not be as valid as it first appears, just because it's on the internet does not make it true. 4. I would like to encourage all parents who are about to vaccinate to talk with their GP. The World Health Organisation wrote a 22 point check list on children who were likely to suffer a reaction from vaccination if your GP does not know these 22 points how do they know if your child is amongst the group that might react. 6. If you are still want to vaccinate but want to take extra measures you can have your child allergy tested via an immunologist prior to vaccination to find out if your child is allergic to anything and you can pay for cheaper vaccinations currently you an contribute $40 and recieve a milder dose or alternatively you can request that your child recieve each vaccination seperately. This means more needles but vaccination cannot be reversed and ultimately you may decide to select only specific vaccinations This may not reduce your chance of a reaction but at least you will know which vaccine did the damage. 7. If you beleive that the MMR was responsible for your child's reaction (especially in the autism area) talk to your immunologist about IVIG it has been found to help some autistic children with low titer levels from vaccination. 8. Above all remember that at the end of the day you get to take your child home damaged or not and that responsibility is enourmous, damaged children are still the ones you love and have to take care of. 9. On a purely personal note the "benefits outway the risk" public relations catch cry is pretty old I think by now most of us know that there is no research out there that proves that this sentence is true I publically challenge anyone to prove this sent nce true. Good Luck and God's Speed.

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To Liz (see below) You seem to have missed the point of our site. We are not anti immunisation. What we want is recognition and assistance when there is a reaction to vaccination. We would also like the powers-that-be to recognise that there are some people for whom the vac inations are more dangerous than the diseases they are supposed to prevent.

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My daughter has had all of her immunisations and is fine. Millions of people are immunised every year and there is small risk of having any serious side effects. If no one decided to immunise we would see so many diseases that would come back for no reaso . Come on....the advantages out way the risks

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at 12 months my daughter who was bieng tested for coeliacs , was given her mmr . first came the spots then the mood swing, irratick bowel movements, hitting her head,thrashing about and screaming not to mention the twitching in her sleep and the crying ,n form of help from the doctors ,somebody said try homeopathy so we did .five months down the line fantastic my baby is nearly herself, it makes me cry to see some of the children that i have met who have been vaccine damaged, i am always telling people th t homeopathy is fantastic for immunisation reactions, i thought that my daughter was heading for brain damage but thanks to my homeopath i can see the light at the end of the tunnel. all the best for the future i am so sorry for what has happened to your amily

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I'm a student nurse specialising in childrens nursing and came upon your site while hunting for information on childhood immunisation. I was touched by Tyler's story and have decided to use it my presentation to indicate there are some dangers in immunisi g children. I was also glad to hear that you are not anti-immunisation, as it is clear it saves many lives. Hopefully more research will applied to the dangers. I wish everyone in your family good luck, I hope Nerhys' cleft palate operation has gone well nd that Tyler is doing well. I will be checking the site for updates. Much love Rebecca xx

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Hi, i found your story very touching. It seems yous all have had it really bad. I wish yous all the best of luck in the future. Lauren

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I'm only 18 yrs old, but already believe in not immunising my children. The risks to me are too great. Not one doctor will give a straight answer why i should. Not one doctor will give me real medical info as why it is so vital for my child. I'm lucky as y mother was informed, she chose not to and i never suffered from immunisation problems or childhood diseases. Nobody will justify to me why we pump HEALTHY new borns with so much drugs, and doses aren't even adjusted to their tiny little bodies! My boyfr end however disagrees with me, but stories like yours only make me fight harder to make others aware of such dangers we give our children unknowingly. But it's like someone said to me, we don't question what a doctor gives us for a headache, so why would e research something doctors say is good for our children. Good luck with your son, and my heart goes out to.

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After reading Tyler's diary, I would like to add a comment that might be useful for future readers- I found it easier at times when we were addmitted to hospital/or ambulance drivers or anyone we contacted that didn't know of my son's history- I had a brief summary/diary of his condition and information that was relevant from the time of his first sign f problems. And, included a list of his current medication & dosage he was on. I keep it up to 2 pages long and condense the oldest information as time goes on. It has been so helpful, especially when my brain has been stressed and goes blank when I ne d to give out info. The doctor's appreciate it as well. Hope this helps.

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Thanks Karen for directing me Tyler's story. You have already been tremendously helpful. I read the comments in the diary first & now will go through the story. It sounds as if I am getting exactly the same run around as you have. I've included my email if anyone wants to contact me about a psuedo LKS support group in WA. Thankyou again, and I will let you know how I am going. Anna

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We are concerned that the Australian Government will prohibit children from entering school in future unless they undertake the standard schedule of vaccinations.This is the beginning of a greater discrimination programme planned by the government.

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I enjoyed visiting your informative site. I am a Director of an early intervention program in the United States (Gianesville, Florida). I will share your site with parents who share your concerns. Best wishes to your family.

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My son is 18 months old and has only recieved his Heb B shot which they gave minutes after he was born while I was still groggy. Up to this point the only illness he has had is one ear infection and a few minor cases of the sniffles. I think this is gre tly due in part of the fact that he has not had any vaccs. Good luck to you and your family and also in your fight to inform people of the dangers of vaccinations. God Bless

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Your story was inspiring and I did learn or become aware of something I've never taught of before. Thank you so much for this web page and I really wish Tyler all the best in his process and Tyler keep fighting it will pay off one of these days don't giv up and mom keep the faith and keep praying faith and strength goes a mighty long way. Good luck.

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PRETTY GOOD MATE

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My child has juvinile rheumatiod arthritus we found out a few months after she recieved her polio vaccine could this be a side affect? how do I find out? the internet is new to me. she has had the JRA for 3 years now. and is due for a booster of polio vaccine, i am somewhat reluctant. I would appreciate any info you can give me. Thanks and God Bless.

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I understand and feel your pain when it comes to vaccines and the adverse effects associated with them. You say, as the parents of this precious child, that you are not against all vaccinations, but I suggest you consider becoming so. I would at least ad ise you to become more aware of ALL of the problems associated with vaccines, and know that education and knowledge on the subject can do nothing but help you mend your view and save your child from any future pain correlated with those silent killers. Do you realize that vaccines are made from aborted human fetuses, calf serum, monkey pus and chick embryo?? Not to mention the many deadly chemicals included in the mix. I just hope you read up on what you inject your child with before you do it again. If yo don't, then you are putting no one else but your precious child at risk, and what a risk it is. I personally came very close to dying when I was injected with my first vaccination as a baby, and my mom vowed never to put me through that hell again. And I am so glad she made that decision. I have done a lot of research on vaccinations and their adver e effects and besides that first one, I have not been vaccinated (I'm 19), my very healthy little sister has never been vaccinated (she's 14) and neither of us plan to have our kids vaccinated when we, if we have them. Please take care of yourselves and our child, and always find out exactly what it is your doctor is giving you...whether it be in the form of a vaccine or an oral drug, and you might change your mind about taking it...Knowledge is Power. Peace, Love, and Light, Sarah

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I read your story while doing an assignment at school on immunization and it's effects.I love your web site, and good luck to you and your so

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For those still looking for a simple book able to answer questions without tryingto convert either way. Greg Beatties Vaccination at parents delemma is still the best book to buy simple straight forward and very insightful Katherine Tyler's mum

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Well I am in the same boat, I have a son that I have written to you about in quite detail. The seizures came after the immunizations, and we still kept having them given until he was about 15 months of age and then we said enough until we could get some nswers as to what was wrong with our little boy. It' s hard enough to deal with it while they're infants, but now mine is in 2nd grade and the schools want to ignore he has a neurological dificit, and they refuse to give him the assistance and services h is in need of, despite various Dr. reports, and all the data. I just don't know what to do. It's as though the people we have to deal with on a daily basis could not care less. It sometimes can make us all a little "daffy" in our house. My son, has h perlexia, and/or static encephalopthy. He is so precious I love him to pieces, and we have just gotten used to having to ignore people who stare, when he is fixated on something, and my patience has grown to where I don't even get flustered anymore, it d esn't do any good anyway to get flustered, it just makes our son more upset. I suppose he is a little spoiled, but, he is such a good little guy, that we can't help it sometimes. Although he doesn't speak well, whenever we sneeze he always says, "God Bl ss You", and if he needs to get past us he always says " Excuse Me". He just copies everything we do, and because we demonstrate behavior of kindness and gentleness ever since he was a baby, he is returning the same to us now. He is only 9 years old, I ouldn't change a thing.....only if it were God's will. But I do have to fight for him, and I will, and I feel it my duty to share the stories of immunization. Prior to them, he was developing fine, and actually showed signs of brilliance, after having m stered certain education toys, then didn't have a clue as to how they worked, looking at them,as though he'd never seen them before, and being unable to sort it out. Can't go into all of the signs here, but there were many. Good Luck to all of you who h ve to walk this road, I know it is a tough one, and it is a teary one sometimes. Believe it or not I just found these web-sites, and I am starting to love it. I would like to invite teachers who are really interested in learning about how to educate a d approach some of these children to write to me. I will have lots of valuable information to give......many teachers are not interested in learning anything from parents as they think they have learned it all from a text book or the college they have be n to. Wrong wrong wrong, but only they would be able to ascertain whether that is true or not. God bless you Tyler, you look like a sweet little darling, I am sure you are every bit as sweet as my little boy and every bit as frustrated at times too---know in every sense of the word that YOU ARE SPECIAL! Bye.

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Hi! I am the chairperson of the Piedmont Early Intervention Coalition in Martinsville, VA. Tyler's inspirational story will be listed among the references I plan to use to explain and promoted early intervention. Thanks for sharing! God Bless.

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I am currently studying speech-language pathology at TCU. I am doing an independant study about the effects of the MMR vaccination on young children. My cousin was diagnosed with autism after having his MMR vacine, and i also work with two childern age that have had similar situations to tylers. If you have any links or information for me i would greatly appreciate it. This site is wonderful!!!!

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I work for the dept of health and child immunisation records for the ACT. I recieve many calls each day from parents who want to know about the side effects of immunisation, I tell each parent only what I read from the Australian Immunisation Handbook. I any parent wants a copy of this book you need to contact the Commonwealth depart of health I think is around $10Aus the handbook, edition 7 willbe avaliable March 2000 does not tell how the vaccines are developed it does however give yow a breakdown of e ch component of the vaccine ie MMR Measles Mumps Rebullea. It will tell you common reations to look out for and the more serious side effects that we need to look out for. In the ACT you have many places to get your child immunised, they can be down t child health clinics which are located in most suburbs, your local GP, and our mobile immunisation Van Called SPOT, Simply Protecting our Tots, immunisations given here are adminisatered by registered nurses who update their skills every year. In some ases where a child is supected to have a reation to immunisation we operate our Special Clinic from the Canberra Hospital, in order to get in, your child will be acess and if the nusres feel it is warranted they will book you in. You must also relise that beacuse you think your child needs to attend they are some children who must attend this clinic. The Special Clinic is run one day a month. . In the ACT the immunisation program is overseen by our Immunisation Cordinator who is registered Nurse with a lot of knowledge about immunisation and children diseases. Also in the ACT our immunisation Unti is linked with the communicable disease unit wh r if there are any reported cases of adverse reactions in the ACT we know straight away. We are a very capable unit who is willing to help any person who wants to know about immunisation. our contact number in the ACT is 02 6205 2300. I found your story really made me think about immunisation the good and the bad, I also think that without immunisation that there would many children who could possible dies of vaccine preventable disease. i have seen pictures of children who have meseals a baby with whooping cough and these little children are so distressed. What would be do without antiboitics, penecellin Finally Immunisation is a personal choice, it is not compulsary. we should respect each others opinions. Have a Happy and Prosporous New year to Tyler and family

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Dearest Tyler, I'm a student at the University of Oslo, for some reason or another, your beautiful Picture touched me so deep. For that reason I'm gonna start my master's research on Early intervention. Hoping what ever out-comes I may come out with or experience will b nefit you & all children & parents in Need!... Love u so your friend as always.. Sabreen

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mad page

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I am touched by Tyler's story. I found this sight in a search for an essay to ensure child immunisation never becomes complusory. Usually my opinions on such controversial matters are dismissed as I am only 15 - it frustrates me that so many people are th s uneducated about vaccines where at least one in 1000 has serious faults. My youngest brother suffers from Autism Spectrum Disorder - a noteable characteristic of this condition is that children appear to be normal up until the age of two or three - when many toddlers receive their vaccines. I know my brother appeared to develop this condition only after being immunised. I have conducted more personal research, discovering only more supporting evidence linking child immunisation to Autism. After reading y ur guestbook I notice I am not the only one who struggles with this issue. All of my friends believe child immunisation should be compulsory, as a few damaged or dead children is a small price to pay so that others don't get spots. For diseases like meas es and chickenpox, early detection is the key - it is no big deal if cared for properly. Children die of these disease when it is not detected within good time. There is so much I wish I could write - researching Autism takes up a great deal of my time. I is nice to know I am not alone and I would love to hear from anyone else who has similar experience or information to share. Amy

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Your insight into the cause of your sons problem should greatly encourage others to seek the answers as well. I am sure that an innoculation of vaccine caused my son to develop an Autism Spectrum Disorder. He was progressing normally prior to this innoculation. Everyone should look into this vaccine issue with a deal of care before innoculation. I wish you & your family well for the future.

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Hi Tyler! What a beautiful story! My son is disabled also, hydranencephaly. He is six. Just thought we'd say HI , were from NY.

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Just feedback: None of your email links work.

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I really feel for you both and your son. It seems very sad that you were doing the right thing and that you got such misfourtune out of it. I still think that even though this misfourtune happened immunisation should still happpen because even though it h rms 5%-10% of the population, it also helps the disease die out, with the more people that get immunised, so therefore if enough people get immunised the proctection against disease far outweighs the very small ricks of immunisation. I would love for you o sen dme an email if you have time to tell me what you think of my comment.

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I really feel for you both and your son. It seems very sad that you were doing the right thing and that you got such misfourtune out of it. I still think that even though this misfourtune happened immunisation should still happpen because even though it h rms 5%-10% of the population, it also helps the disease die out, with the more people that get immunised, so therefore if enough people get immunised the proctection against disease far outweighs the very small ricks of immunisation

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An amazing story of courage. Really considers both sides of the story.

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Dear Jenny, I have just seen your two e mail messages below. Please feel free at any time to contradict what we have seen and observed ourselves, but please do not say it is bunkum and then not put something of substance in its place. The people who read ur website have the right to read both sides of this debate, please feel free to add your comments or research but do not abuse and walk off. The parents who read this site need answers offer them a website or some documentation Bunkun however doesn't cu it we want substance. Please

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Hi I am only 15 but I was touched by Tyler's story...I wish him the best of luck in the future, thankyou for sharing his story Jacinta

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I was truly touched by Tyler's story. He is an inspiration to others and i wish him the best of luck in the future

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Thank you for the large amount of work you have put into this web site. I have previously placed a message on this site, and just wanted to add that I hope Tyler continues to move forward with his rehab, and I am deeply sorry that you suffered through be urocratic and medical red-tape. Please do not judge all Doctors and other medically trained professionals by your experiences. The GPs I work with are extremely interested in accessing our Immunisation Program (only running for 3 months now), and the in ormation provided by our program will be available to 100% of the GPs in our region free of charge. This program endeavours to change the way that GPs deliver information relating to immunisation to parents, as well as increasinfg their knowledge abot im unisation in general. Once again, good luck in the future Tyler, and know that there is work being done to get better info across to parents.

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I found this web site whilst researching "Anti-immunisation". I am a Registered Nurse and Generalist Counsellor who currently works for a Division of General Practice as their Immunisation Program Officer. My position relates to the education of GPs abo t immunisation in general, and specifically related to immunisation side-effects and medico-legal issues in immunisation. I just wanted to let everyone know that work is being done to ensure that adequate information is given to parents at the time of im unisation. Many GPs have not had access to this information, hence, this info has not been passed on to parents. Research into immunisation, and the effects it has on our overall health, is conducted regularly, and just let me say that the article writte about the "hidden Debate" available on this site is the biggest lot of BUNKUM I have ever read relating to our immunie system. It is blatant scare-mongering, and an afront to the intelligence of Australians. It sounds logical, but it is rubbish - our i munie systems DO NOT have a FINITE amount of cells to fight disease, and the whole argument about cancer is farcical and dangerously misleading. I feel for those families whose children have suffered serious, life threatening side-effects to vaccination, and I think that every medically trained person knows that these side effects occur. Our population would have FAR MORE DEATHS, SERIOUS SIDE EFF CTS< BRAIN DAMAGE< ETC If we let the diseases run rampant in our society. What is the answer? I would be interested to hear from you on jennypallas@hotmail.com.

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i'd just like to wish tyler the best of luck in the future

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I think you should have more of these sites as they allow us to interact with both those of our age and above. With more of these sites i'm sure you would profit as would we, i hope you take this into consideration. Yours Faithfully A thankful user.

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Hello, I am Ted Bergeron the webmaster of Parents Epilepsy Support http://members.tripod.com/~Ted_Bergeron/index.html We have started a campaign to recognize those individuals who have influenced and befriended our special children. Winners will be selected periodically, and they will receive a letter of thanks as well as a certificate. I intend upon using the Silver R bbon logo along with adding the web site and an explanation of the silver ribbon on the certificates. I also hope to mail a small supply with ID cards and Silver Ribbon pins to each winner. For a clearer explanation of this campaign, along with the nom nation form, please go to http://members.tripod.com/~Ted_Bergeron/index-11.html Because the entry form is set up for a US mailing address for the winning entries, please just put the mailing address for your nomination in the area where you write why this indiidual should win if you are not a US citizen until I fix the submission for .

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I am not a mother nor am I planning to be one for a long time. I am in fact a TAFE student who is doing an assignment. I have spent a lot of time to date reaserching immunisation and childhood diseases, but I must say that this site has influenced me the ost. When you are reading about the 'few' that get the side effects, it is hard to be compashinet. However to see this little boy's face flash on the screen makes all the difference. I do believe that immunisation is the way to go, but I think that the co tinual bombardment of Immunisation campains should be equaled by the facts about the problems with immunisation. Thank you for the eye opener.

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I've chosen not to immunize my son, and although it was and continues to be a hard choice, I feel that it is the right one for us. This is not true for everyone, but I urge you all to research carefully before you make a decision that cannot be altered. Hang in there, and god bless. Your strength is an inspiration.

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Tyler's story is beautiful, and I wish him the best of luck in the world.

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I feel that this is a wonderful way to increase awareness in children born with diseases and disabilities. I am devoted this cause and feel that if people aren't careful, we could have a lot of children with a lot of problems. People need to take this i sue much more seriously in order to prevent prolonged problems caused by the diseases. I would like to comment that this is a wonderful site. I hope that many more people visit this site and sit'e like it.

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You have a really neat site and its presented well. I know by my experience how difficult it is with children whether they are disabled or not. We have challenges in life and whether we take them in a neg or positive way. I know we will make it through th m. I wish tyler the best in the world and know that there is a lot of people out there that love you and support you. God Bless and take care.

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ITīS BEEN QUITE INTERESTING VISITING YOUR PAGE, AND I WANT YOU TO KNOW I AM SORRY FOR THE MISFORTUNE OF YOUR CHILD. HOWEVER, VACCINATION HAS BEEN A METHOD PROVED TO BE UTILE IN MOST OF THE CASES... IT IS TRUE THOUGH THAT THE DOCTORS SHOULD PREVENT PARENTS CHILDREN AND THE POPULATION IN GENERAL IN THE ABUSE AND CONSEQUENCES THAT VACCINES MAY LEAD TO. ITīS A PLEASURE CONNECTING WITH THE OTHER SIDE OF THE WORLD, WHILST I LIVE IN COLOMBIA, SOUTHAMERICA, I HOPE YOU ENJOY IT IN AUSTRALIA!! GOOD LUCK AND BEST WI HES!

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Hello I'm in school bye

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Thank you for your page. You were the only place I have found on the web that talks about Early Intervention in Australia. I run The Andrew Project which is an information and referral service for families with special needs children. The information f und on your page was sent to one of my clients and was so glad to find you!

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Tyler, it was just wonderful meeting you on your pages. You are such a inspiration to so very many. Thank you for sharing your life with us all. I look forward to reading lots more about you in the future and sharing in the joy of your exciting progress

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Just had to come on back again today cause I love your site so much!!

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Hi, i have a daughter that regressed in her speech and motor skills after receiving her 18 month vaccination. She is now 28 months and has no vocabulary and limited understanding of commands, she does not imitate at all, and finds it difficult to place things such as a cup on a table or a block in a bucket, things that were no problems a year or so ago. We have been unable to get any sort of answers from the Childrens hospital or from the many doctors we have visited, in most cases they will say she is still very young and that we should wait and see how she developes over the next year. As of 2 days ago we started our daughter on a Homoeopathic treatment, we are now just witing in hope. All the best in the future...... Peter......

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I love you web page. My 18 month old son Garrett also has seizures. (we thing partial complex) We have had a very hard time in getting doctors to listen to us also. Right now he is on Tegretol but it is starting to not controle him again. Keep pushing a d you will get what your son needs. And remeber Mom does know best. Aimee Mcdougall Canada

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I have chosen not to immunise my daughter Marliss, yet I feel that there is a force coming from daycare, schools, my parents and the medical proffesion in general. It scares me to think that the medical proffesion may be giving us this false sense of sec rity to help themselvesout. I mean... Cancer alone is a billion dollar industry per year. I have heard that immunizations can be the reason why AIDs is here. The only way I can sleep at night is thinking that 1 out of 1000 babies can die from a reactio . ( I had to sign a paper that said this and went on to say that the health nurse would not be liable if my son, who is older, did die) With the 1 out 1000 that can die , 1 in 600 can develop epilepsy or seizures , 1 in 200 can have severe reactions. I now feel that there is a 1 in 1001 chance that my child may acually get the disease we are vaccinating for and those odds are less than the death odds. Obviously I am still very confused, please send me on a good path to find the right answers .

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My daughter has Aicardi Syndrome. We are lucky to be in an area with wonderful early intervention. Unfortunately the school system is awful. My oldest son has ADHD.

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Hi my name is danielle, i'm 15 years old and i would like to tell you that your homepage is very good. I enjoyed it a lot and would like to comen you on your goodwork! tell tyler i wish him the best and also you! bye

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Dear All who have visited our website I would like to thank you all for your lovely comments and generous support. We reply to as many e mails as possible but please bear with us as at present its around 20 a day and it may take a while, a lot of people a k us about literature Geag Beatties Vaccination a Parents delemma is about the best book I have ever read on vaccination I read it in a hour, hey I'm a mum my time is important. To the children who write in our guest book please remeber that others have p aced a lot of time and energy into providing this information for you, if it is not what you are looking for please leave but disrespect is not necessary, remember you leave your e mail address behind when you write we can tell your parents.............Ka en

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I like it alot because it is my name.

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I can only say I support all you're doing and ache for all you've been through. My son, Andrew Elijah, has a variant of LKS and is almost five years old. I had never considered the possibility of immunizations causal to his problems as he never appeared t experiened problems concurrent with immunization, but reading this challenges me to further investigate. In the interim, Andrew does well on his medications and is making progress. I fervently wish the same for your son (with whom, INCIDENTALLY, I share he same birthday!) - Lynn Mamet

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I can only say I support all you're doing and ache for all you've been through. My son, Andrew Elijah, has a variant of LKS and is almost five years old. I had never considered the possibility of immunizations causal to his problems as he never appeared t experiened problems concurrent with immunization, but reading this challenges me to further investigate. In the interim, Andrew does well on his medications and is making progress. I fervently wish the same for your son (with whom, INCIDENTALLY, I share he same birthday!) - Lynn Mamet

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I can only say I support all you're doing and ache for all you've been through. My son, Andrew Elijah, has a variant of LKS and is almost five years old. I had never considered the possibility of immunizations causal to his problems as he never appeared t experiened problems concurrent with immunization, but reading this challenges me to further investigate. In the interim, Andrew does well on his medications and is making progress. I fervently wish the same for your son (with whom, INCIDENTALLY, I share he same birthday!) - Lynn Mamet

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Tyler is a beautiful child. I am so sorry that the vaccination may have caused his problems. I have seven granddaughters and three grown daughters. All of us have been vaccinated with no problems. One of my granddaughters was born an Epileptic and Ast matic, her three other sisters are also Asthmatic with other health problems also. However my little Epileptic granddaughter who is five years of age shows signs of being highly intelligent. She has a photographic memory, has been put in advance classes at school, and is good at Gymnastics. God bless all our children around the world. And white light and blessings to you dear Tyler. My husband and I are 51 years of age also originally from England, living in West Australia near Perth for the last 24 y ars. Love it here. Hi fellow pommies. I visit the MGH chit chat & Headache room also the Depression room. See you there.

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DEAR KAREN, I JUST LOVE YOUR HOME PAGE, AND I WANTED TO SAY THANK YOU FOR ALL THE HELP YOU ARE GIVING TO MY FAMILY AND OTHERS. MAUREEN

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yuor story really touched me and I feel for your son if it ever happened to any my brothers and sisters I would be devastated. I came upon this site looking for things on immunisation.

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My 2 1/2 year-old daughter, Maura, has mild to moderate cerebral palsy. She's been in an Early Intervention Program that's been helping her a lot--play group, speech therapy and occupational therapy. After 14 months of physical therapy doing little for er, I found much more successful therapies for her--Feldenkrais and Craniosacral Therapy (CST) have been the best for her. The craniosacral therapist does more subtle work on her brain and spine, while the Feldenkrais Instructor teaches her body how to m ve. Both practitioners help integrate her nervous system. Even casual observers can see what six months of Feldenkrais and ten months of CST have done for her. She might not be able to walk by the time she's three, but she'll certainly crawl by then. And nothing gets past my daughter. Even though she's nonverbal, she expresses herself in her own unique way. I know what it's like to have crummy doctors, too. I know what it's like to know more than the medical profession, too. Hang in there. I'm glad you have this page. It's good to know all of us with children with disabilities can connect with others.

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This page is not only wonderful, but very touching as well. The courage and strength by everyone affected by this is not only touching, but inspiring as well. I stumbled upon it as I was conducting my research for a project I am currently working on abo t early intervention. If there is anyone out there that would like to help me out with my research or particpate in a survey for those tied to early intervention (both professionally and personally) please contact me. THANKS!

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Hi I was looking for information reagrding measles and stumbled upon your page...you see my son who is 16 mths has measles at this very moment and he is FULLY vaccinated....makes you wonder why you bother .......I found your strength and courage fantastic ..I also have two children who are epileptic (one whos epilepsy started at 4 months due to encephalitis) and I am an epileptic too ....feel free to email me I would love to talk to you more

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this page has been informative and helpfull i am currently studying to become an under 8s teacher and this was a nice opourtunity to read about real people.

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Hi there. My wife and I are fast approaching the MMR point with our daughter. Up until now she has reacted through swelling of the limbs and general ill health with all previous vacinations. We are now considering whether it is worth taking the risk of v cinating her. Internet sites and chat pages like this are most informative, during times of governemnt denial and public scaremongering (A playcentre in NZ expelled a child because they weren't vacinated). As a scientist I feel that the studies on child ood vacinations must have been done using proper protocols, but the more you investigate into the matter the more you find the research is funded by pro vacination groups and that a large number of SIDS/behavioural cases are attributed as non-related case , when clearly they are not. My only hope is when the time comes to vacinate our daughter that feel confident that we have made the right decision.

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Hi Karen, I noticed your e-mail address on the MGH chat room address book. It is so close to mine, I decided to take a peak at your page. Well,we share a last name!! I also have son with special needs, his name his Evan, he has spina bifida. We loved his Ear y Intervention Program it is such a big help. Thanks for sharing your little guys's story, it touched my heart. Hang in there.
hugs,
Cindy

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We have decided not to immmunise our children 9, 7, and 5. The decision not to was a difficult one but we were reassured by obtaining as much information as we could. We are still not 100% comfortable with our decision as I am sure parents who decide to i munise may not be 100% comfortable with theirs. I am on the look out for more info about the MMR Shots as it is our childrens schools turn and many other parents and teachers have queried us about not having the boys immunised. Problem is we are not medic l articulate. We find it better to hand on the info we have gathered than to verbally debate. Sites like this are important. Keep up the good work and all our best wishes Tyler.

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Do you have any information on home schooling for the autistic child? thanks

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You have a Wonderful boy. I believe Tyler is an Angel. God Bless you and keep the faith. I too have a child who has a disability. Please visit him. There is a poem there that is made for the parents or family or friends of a child born with a disability.< r>

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Hey there! Great book! The wonders of life are too often overlooked...guess this site reminds me to take time to see the 'little picute' as well. Thanks for the opportunity Karen. Scott /aka/ Viper!

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Oh, your site is beautiful and your story so heart rendering. One of my twins has multiple special needs. I've been where you've been and and are. I had to stop reading the diary because the tears where blocking my vision. Bless you, Tyler and your fa ily with strength. You have a long road ahead, but the mission will be well worth it and very rewarding. ((((((hugs)))))) SHEBA

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My son Orion was born in February 1996. I had already been researching the vaccination issue for several years beforehand, so by the time he was born, I knew I he wouldn't be vaccinated. It was just a matter of convincing my husband. He came around whe Orion was 6 months old. Orion's health is great, he's only had the occasional cold, none of the other complaints that seem to plague many of the vaccinated children I know. It seems to me that our society is so afraid of disease that we allow the authorities to persuade us that injecting a substance containing god-knows-what into our babies tiny bodies is the "magic bullet" that will protect them from all disease. My person l conclusion is that Health is the only protection and disease is a body's way of eliminating toxic build up. My heart goes out to you and Tyler. I grew up with an Autistic brother (whom I now think was vacine damaged as he was developing normally up to the age of two and a half). Good Luck.

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Before starting this assignment, I was all for vaccination. After reading your story and others like it, I'm not sure. How can you be sure that it was vaccination that caused your sons condition? I'll let you know my opinions when I've finished the assign ent. At the moment I have an open mind.

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My heart broke as I was reading Tyler's story. I'm a child-care student who hopefully will work with children like Tyler when I finish my studies. My heart goes out to you and I congraulate you on your courage and bravery-- Give Tyler a big hug and kiss for me!! Thank you once again Megan.

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JUST WANTED YOU TO KNOW THAT YOUR STRENGTH, COURAGE AND LOVE WILL DO WONDERS FOR YOUR SON. I HAVE A FIVE YEAR OLD DAUGHTER WHO IS SPEECH IMPAIRED WITH A LEARNING DISABILITY AND NOT A CLUE OF A DIAGNOSE WHY. SHE HAS BEEN PART OF THE TEXAS EARLY INTERVENT ON PROGRAM SINCE SHE WAS ABOUT TWO. THERE ARE MANY PROGRAMS TO ASSIST YOU AND YOUR SON OVERCOME OR JUST COPE WITH ALL THE CHALLENGES YOU ARE FACING. MY DAUGHTER KNOWS NOT SHE IS DIFFERENT FROM ANYONE ELSE BUT IS SURE SHE IS LOVED MOST BY ME JUST THE WAY SHE IS. GOOD LUCK AND STAY STRONG. IF I ANSWER QUESTIONS FOR YOU OR SUGGEST AN ORGANIZATION I'LL GLADLY DO SO. CONTACT ME. LOVE AND PEACE TO YOU AND YOURS.

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Glad to read informations, like Yours.

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What a great tribute to your son. You are truly amazing parents, Tyler is lucky to have such strong advocates.

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Read your story and was touched. We have a 4 1/2 yr. old who is severe to profoundly deaf. His is from and antibiotic overdose so he heard until just before his second birthday. Would love to hear from you time to time and share stories. Our son is do ng well and learning to speak with the assistance of his hearing aids and a personal FM system. Good luck and God Bless you on your journey. jennifer

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I came across your page due to an assigment I have to do for school. After reading your story all I want to say is GOOD LUCK! I wish you all the best. Take care!

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Hi, I'm 13 and reading your site really touched me that you care so much about your child, and you're trying to make a difference to other children and people with dissabillities. I don't know much about things like this at all, but I do know that they'r very painful

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What a wonderful tribute to your child and experiences. I am the Council Coordinator for our local Part H services, and found your site as I was searching for potential links for our website. Best of luck to you all.

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I was looking up info. on my name and came across your site. I wish you the best of luck with Tyler and may the future hold the best for you all. Just remember to always shoot for the moon, because if you miss you will still be amongst the stars! Hang n there.

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What a darling child. I am a speech path - for many years I worked with pre-school and kg aged children. I am now working with 1st - 5th grade. Although many things will be challenging for you and Tyler, never forget that he can succeed and have a happ and fulfilling life! Best of luck !

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I hope that you are getting used to having something like that. I hope that you will overcome the fear of having it. I hope that you will be strong and get on with the very best life that you have. I'll try to write you back in a couple of days.

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Whether you stay as you are or get better it makes no difference we will always love you anyway.

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Hi, Just read about your precious Tyler. I have 14 month old twins. One is fine the other has MANY MANY problems. Just found out that he may be deaf because he doesn't respond to anything. He is also blind, has a Grade IV hemorrhage, a shunt, cerebral palsy, reflux. THe list goes on further but you get the picture. My heart breaks for him every day. He can't see me and probably can't hear me. If he does hear it isn't registering into his brain due to the hemorrhage. His seizures are daily and he c ies when he has them. Some days are better than others but I am feaful of his future as well as mine. Keep the faith for Tyler, as mine is slowly dwindling with my little Conor.

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I am sorry to hear about your problems with your son. I wish there was something I could do to help,but I Know nothing. Wishing luck, Ryan

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Hello Karen and Richard, Came to look at Tyler's web pages. What a sweetie. Am really glad you got in touch with me via email. I know the ups and downs and joys and sorrows of raising a special needs child. My son Max has a moderate-severe sensorineural hearing loss in both ea s and he has been diagnosed with Bipolar illness type I- rapid cycling. These children have so much to teach us!! I have learned much from my son...about life and enjoying the simple pleasures. Taking each day as it comes and cherishing the fun times. Kindly, Brandy

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I'm doing a research paper on kids who have medical promblems and when I read your story it touched my heart.

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I also ran across your story because I'm writting a research paper (Early Intervention for Deaf children). Tyler's story is very unfortunate and I hope you find the help and support you deserve and need. **He's precious and I'm sure a handful as all 2 y ar olds are.**

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I'm doing a reasearch paper on immunizations and found your site. Thank you for the information.

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I came upon your page because I am writing a research paper on the subject of immunization. I want to tell you that your story is touching and that I admire you both for your perseverence through all the red tape you've been handed. God bless you and yo r child and may you come across the help you need soon.

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I've just printed your info out and will read tonight. I've been researching the MMR vaccine as my little girl just turned 15 months this week (that's when it's due here in NZ). I love the photo of Tyler. Thanks for sharing your story with the world!!! P.S. We've basically already decided not to get the MMR but I'm still interested in reading about it all.

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I work with special needs pre school kids. It is so heart warming and encouraging to see parents who show such involvment in their child's education . Unfortunatly, it isn't as common as one may think.I take my hat off to you and wish you and your beautif l child goodluck! I loved your page!! I know that support among parents means so much! What a beautiful child you have too!!!

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Hi! Great Story! Thanks for sharing! My son has mild to moderater bilateral hearing loss. My site, The "Speaker" Page, is dedicated to Childhood hearing loss! I'd like to provide a link to your site from there & also offer you my site award! Please -mail me for details! :) TTYS & Keep up thee good work! :)

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A big "Hi" to Tyler from Leah. Leah had what appears to have been a reaction to the new polio vaccine. She is doing well now. Best wishes!!!

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Thanks for visiting my site. I checked out yours and it is so inspiring. Your son Tyler is an absolute doll!! I would like to add a link to your page from my page, if that's ok with you. I will come back later to check out all the pages. Your story a out Tyler really reached my heart.

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Wish you luck in your search for answers for your son. I am a 29yr mom with Epilepsy with a 2 month old son and although epilepsy is difficult, it is manageable. If you have questions that I may be able to help with send me some mail and ask.

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I'd like to wish you and your wife luck with Tyler. I think that everyone would like to know more about "mitochondrial disease" and all of the variations, so if anyone is interested, please go to The United Mitochondrial Disease Foundation's website at: h tp://biochemgen.ucsd.edu/umdf/ I wonder if there may be an association between what happened with Tyler and the MMR and mitochondrial disease?

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I am a Homeopath and working with PVS (post vaccinal syndrome). Children with complaints after vaccination are given the potentiated vaccins. Many complaints dissappear after administration of these potentiated vaccins. T. Smits, M.D. describes a method n his book obout the PVS. (dutch language) I hope there can something be done for your son Tyler.

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I'm using Homeopathics to immunise my children. So if your struggling with the (should I, shouldn't I immunise) issue, Homeopathic immunisation may offer you an alternative.

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The choice to immunise or not is a hard one. There is a lot of pressure bought to bear to force us to do it such as requiring the vac. cert before entry into school. It is our duty to find out as much as possible. Best of luck to all. Glenn

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Happy Birthday!

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I think early intervention plays a very vital role in the education of our young children with disabilities. I have two cousins with Cerebral Palsy so I quite well aware of the extensive work that can go into training a disabled child. I am also current y a special education major at Mansfield University in Pennsylvania(USA).

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I've started the ball rolling as I know how people hate to be the first one to sign anything. Tyler would be happy to read any comments (when he learns to read that is).