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| This page is dedicated to all the families that are battling cancer or leukemia. May God give your whole family the strength needed to fight these nasty diseases! My heart goes out to anyone who has to fight this battle! I hope you find some helpful resources here! |
| For Children With Cancer/Leukemia |
| Refer This Site If You Know Someone That May Benefit From It. Thanks |
| The National Marrow Donor Program The American Bone Marrow Donor Registry Bone Marrow Donors Worldwide The Bone Marrow Foundation |
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| Copyright © August 2000 All Rights Reserved Contact the webmaster, with suggestions, comments or questions heavenlylights@charter.net Best experienced with Internet Explorer. 800 x 600 pixels optimized |
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| Cancer/Leukemia Resources |
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| Cancer is so limited...It cannot cripple love... It cannot shatter hope...It cannot corrode faith... It cannot destroy peace...It cannot kill friendship... It cannot suppress memories...It cannot silence courage... It cannot invade the soul...It cannot steal eternal life... It cannot conquer the spirit... Anonymous |
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| Make A Child Smile features three new children each month that are fighting illnesses. They tell the story about each child, and list a PO box you can send a nice card or small gift to. They also send updates on these children as the parents send them in. Great site!!!!! For the price of three cards and stamps...you can bring great joy to these children and their families! http://www.makeachildsmile.org/ Captain Chemo- This animated and interactive educational site is primarily aimed at young cancer patients to explain the disease and its treatment. http://www.royalmarsden.org/captchemo/ Send A Child A Smile If a child you know is feeling down, just fill out our request form, and we will attempt to brighten their day. Our special mail package is full of activities, stickers, everything they need to make a craft, and a personalized letter reminding them how special they are and are free of charge. http://www.sendachildasmile.com/ Kids' Home at NCI! A web page just for kids with cancer, sponsored by the National Cancer Institute. Includes the story 'Phil The Pill' about a boy who absolutely hated taking his medicine, and poetry and stories by children. http://wwwicic.nci.nih.gov/occdocs/KidsHome.html Candlelighters Childhood Cancer Foundation provides information on many aspects of childhood cancer. Publications include Candlelighters Quarterly, a publication for parents and professionals Educating the Child with Cancer The Candlelighters Guide to Bone Marrow Transplants in Children, Know Before You Go: The Childhood Cancer Journey Introduction to the American with Disabilities Act . www.candlelighters.org Coloring Pages from Mary's Little Lamb Graphics. She offers cancer bears to kids who are battling cancer to print for them to color..or color online. http://www.maryslittlelamb.com/color.htm Sending Our Love - is basically a labor of love. Far too many people are suffering out there and could use a little joy in their lives. Each month several people are featured on our site along with their stories. I encourage everyone that visits to pray for them and if they can, send cards of encouragement and even little gifts if they can, to brighten their days. http://www.sendingourlove.org/ Kids Cancer Network Online games, contests and other cool stuff for kids with cancer and their families. Creators of "The Funletter," a colorful, activity magazine. http://www.kidscancernetwork.org/funletter.shtml Spirit Creations - is a site where you can send a plate to send a sick child, or sponsor a plate to go to a sick child. The plate and a plate stand are sent to hospitals, hospices, and homes around the country, semi-anonymously. The first name of a child is given to us...his or her condition...and hopefully their age. The plate goes out with the child's name. No brochure or advertisment of any kind is included. No contact is made except by a Teddy Bear, an Angel and a card. If you cannot afford to have one sent...they will find a sponsor. http://www.spirit-creations.com/angel1.html Outlook- The focus of Outlook is to address the needs of survivors of childhood cancer and their families. http://www.outlook-life.org/ Cancer Source for Kids Dealing with cancer is tough. That's why Cancer Source created CancerSourceKids, a place where you can learn about cancer and have fun with games and art. http://www.cancersourcekids.com/ Ask NOAH About: Cancer This site has everything you could be possibly looking for. Tons on information! http://www.noah-health.org/ Spinoza's Buddy Bear Project- Check out the 'Buddy Bear Project" to find out how to get a free bear for your child! This Bear is GREAT!!!! 1-800-CUB-BEAR http://www.spinozabear.com/ Cancer Kids- A fun site to help children learn about cancer. This site has incredible stories explaining cancer to kids. www.cancerkids.com Blood Counts Information for Kids with Cancer- This site explains blood counts to kids. http://coninfo.nursing.uiowa.edu/sites/pedspain/bcounts/index.htm Blood Counts and Record Keeping for children, not only explains blood counts but also gives ranges for a healthy child. http://www.patientcenters.com/childcancer/news/blood_counts.html A Cast of Cancer Characters-describes Cancer for kids and parents to understand. http://coninfo.nursing.uiowa.edu/sites/pedspain/CancerCh/index.htm Starbright Foundation FREE STARBRIGHT VIDEOS WITH ATTITUDE are designed for teens and pre-teens (ages 10 to 18). In these videos, teens discuss creative strategies and solutions for coping with the challenges of serious medical conditions http://www.starbright.org/projects/vwa/index.html The STARBRIGHT Explorer Series is available on four separate CD-ROMs and is free of charge to children with serious illness, their families and healthcare professionals who live in the United States or Canada. Chose from Blood Tests, Medical Imaging, IVs, Bone Marrow Aspiration & Biopsy, Spinal Tap, The Sickle Cell Slime-O-Rama Game, Fitting Cystic Fibrosis Into Your Life Everyday and Living With Kidney Disease. http://www.starbright.org/projects/hes/ordering_cdrom.html Kids Need Prayer- A wonderful site where you can go and pray for children in need. You can also join their mail list and get updates on the children, or add a child to the prayer list. http://www.kidsneedprayer.net/ CancerNet Many children are treated for cancer, HIV, and other illnesses. This site is for them. You can read and contribute your own art work, stories, poems, or ideas http://cancernet.nci.nih.gov/occdocs/KidsHome.html Legacy of Hope- Support and Encouragement for those who are battling cancer, and those who love them. We have no qualifications to doctor the body, but as we have received comfort and love from Christ, we want to be the pipeline through which that same comfort can flow into your life and give you encouragement and hope! http://www.oocities.org/legacyofhope/ Squirrel Tales- The place to come for practical tips and encouragement for the parents of kids with cancer. It's written by other Moms and Dads who face the battle of cancer in their families. Great site!! http://www.squirreltales.com/ Ronald McDonald House- Offers a refuge from the hospital, a home away from home. www.rmhc.org Free Hats and Bandana's for Kids With Cancer http://www.kennyray.com/chemohats/index.cfm Oncolink Pediatric Leukemias This site has general information, symptom management, Bone Marrow Transplant information, Psychosocial Support and Personal Experiences, trials, and a Kids corner. Here you can subscribe to many mailing lists in regards to pediatric cancer and leukemia. http://www.oncolink.upenn.edu/disease/leukemia/ Cancer Care is wonderful. Lots of information!!! Toll free counseling, caregivers section, contributions, information on types of cancer, section on helping children understand cancer, and tons more!! http://www.cancercare.org/ Locks Of Love -Locks of Love is a non-profit organization that provides hairpieces to financially disadvantaged children across the U.S. under age 18 suffering from long-term medical hair loss. http://www.locksoflove.org/ Give Thanx is a non-profit organization dedicated to building a network between the community and families with Pediatric Cancer. http://www.givethanx.net/ Smiles and Hugs is another site that features children with illnesses in Canada to send cards, gifts, or email to. http://www.smilesnhugs.com/index.htm Project Linus provides security through blankets to children with illness or who have been traumatized. http://www.projectlinus.org/ Hip Hats With Hair Free for any child in need http://www.hip-hat.com/ Kids Cope This site is for children who have parents with cancer. You can order a FREE comic book or video explaining cancer. http://www.kidscope.org/ Smile Quilts - Smile Quilts is a site devoted to creating personal virtual quilts for children suffering from a life-long or terminal illness. They try to bring a little happiness into their lives and show them how important and special they are. Each quilt is personalized for each child by including their pictures, their favorite colors and interests, and their family members. http://www.smilequilts.com/ Camp Cancer - An Online place for kids dealing with cancer that has fun things to do. http://netpressence.com/camp-cancer/ St. Jude Children's Research Hospital http://www2.stjude.org/ Pediatric Pain - Features to sections "Pain Pain Go Away" helping children in pain, and "Making Cancer Less Painful" to help parents understand pain and teach them how they can help their child deal with pain from cancer. http://is.dal.ca/~pedpain/selfhp.html Cancer Pain Managment In Children http://www.childcancerpain.org/ International Confederation of Childhood Cancer Parent Org It is a worldwide network of organizations of parents of children with cancer. http://www.icccpo.org/ Childrens Oncology Camps http://www.coca-intl.org/ Look Good Feel Good - Locations and also Teen Tips http://www.lookgoodfeelbetter.org/index_6.00.html American Cancer Society For Teens http://www.acsteens.org/ |
| For Children Whose Parent Has Cancer |
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| Kids Cope- This site is for children who have a parent with cancer. You can order a free video or comic book. http://www.kidscope.org/ Kids Konnected- Provides friendship, education, and support to kids who have a parent with cancer. www.kidskonnected.org |
| Wish Foundations |
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| This page is for 18 and over... Fairy Godmother Foundation- Makes wishes come true for loved ones facing terminal illness. Fairygodmother Foundation strives to bring joy to the lives of individuals (18 and older) and loved ones in their time of greatest need by turning dreams into reality. http://www.fairygodmother.org/domino/fgm/fgm.nsf/fairygodmother/HomePage?Open Make A Wish Grants wishes for children with terminal illness. http://www.wish.org/ The Sunshine Foundation Of Canada http://www.sunshine.ca/ Sunshine Foundation This organization which serves those across the United States fulfills dreams and wishes of chronically ill, terminally ill handicapped and abused children. The majority of wishes the Sunshine Foundatoin fulfills are to visit a Central Florida attraction. http://www.sunshinefoundation.org/ Brass Ring Society This organization which serves every state was founded to fulfill the dreams of children who suffer from a life threatening or terminal illness. http://www.worldramp.net/brassring/ Children's Hopes & Dreams Children we serve suffer with illnesses such as cancer, cystic fibrosis, AIDS, Hodgkin's disease, leukemia, muscular dystrophy, and sickle cell, to name only a few. We cooperate with organizations such as the American Cancer Society, serious illness camps, Ronald McDonald Houses, children's hospitals nationwide, Leukemia Society, Muscular Dystrophy Association, and many more. http://www.childrenswishes.org/ Children's Wish Foundation International Children's Wish will fulfill the favorite wish for any child not expected to reach age 18. Each wish, truly the child's own, must be completed while the child is healthy enough to fully enjoy it. The immediate family is included in the wish fulfillment, so that the child and family will share in the experience and create happy memories together. http://www.childrenswish.org/ Children's Wish Foundation of Canada - This organization with 12 provincial Chapter Offices from coast to coast is dedicated to fulfilling a favorite wish for children afflicted with a high risk, life-threatening illness. http://www.childrenswish.ca/ Dial-a-Dream - United Kingdom This organization strives to make Dreams a reality for children suffering a life threatening or debilitating illness, and thereby enabling them to continue their fight against their illness. http://www.dial-a-dream.co.uk/ Dream Come True - Pennsylvania Dream Come True seeks to fulfill the dreams of children who are seriously, chronically, and terminally ill and reside in the greater Lehigh Valley area of Pennsylvania. http://www.dreamcometrue.org/ Dream Factory of Greater Kansas City Grants wishes to seriously or chronically ill children aged 3 to 18 who live in the greater Kansas City area. http://www.kcdream.org/ Grant-A-Wish Foundation - Maryland This organization has designed a variety of programs and services (Wish Granting, Hospital & Respite Housing, Support Group Sponsorship, Online Support Group, Hospital Dream Boxes, Local Adventures, In-Hospital Entertainment, and Educational Support) available to children being treated for life threatening illnesses. http://www.grant-a-wish.org/ Indiana Children's Wish Foundation The Indiana Children's Wish Fund grants the wishes of special Indiana Children who suffer from a life-threatening illness. These children are between the ages of 3-18. http://www.indywish.org/ Kids Wish Network Kids Wish Network is a nonprofit charitable organization whose sole mission is to grant wishes to children with life-threatening illnesses. We're always looking for ways to provide unique services for sick children and their families that they are not likely to find anywhere else. Kids Wish Network has developed a funeral assistance program to assist the families of "our kids" who have passed away. http://www.kidswishnetwork.com/ Make-a-Wish Foundation of India This chapter which serves those in India helps children suffering from life threatening diseases realize their heart's desire. http://makeawish.indo.net/ Tender Wishes - Canada This organization grants wishes to children between the ages of 2 and 18, who have a life-threatening illness, and reside in the Regional Municipality of Niagara. http://www.tenderwishes.org/ Wishing Star - Idaho and Eastern Washington State This organization grants wishes to children age 3-19 with life threatening diseases in Idaho and Eastern Washington State. http://www.wishingstar.org/ A Wish With Wings - Texas This organization grants wishes to children with life-threatening or catastrophic illness between the ages of 3 and 17, who reside or receive treatment in the State of Texas or out of State with Board Members' approval. http://www.awishwithwings.org/ Wishing Well Foundation The Wishing Well Foundation will consider the wish of any child with a life threatening illness from ages 3 to 18. The Wishing Well Foundation receives referrals from doctors, nurses, and people just like you! Many of the wishes are for trips to theme parks or a special day with a special someone . . . perhaps a celebrity or hero. The wish can be most complex or very simple. http://www.wishingwellusa.org/ |
| Travel Help |
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| AirLifeLine National network of pilots who fly patients and their families to get treatment. Patients must be in financial need. www.airlifeline.org Corporate Angel Network Arranges free air transportation to cancer patients and bone marrow donors www.corpangelnetwork.org National Patient Travel Center Makes referrals to charitable air transport services based on an evaluation of patients needs. www.patienttravel.org Miracle Flights For Kids Provides Free transportation to treatment centers for those who cannot afford it. http://www.miracleflights.com/ Angel Flight Providing FREE air transportation on private aircraft to financially and medically needy people who cannot access or afford regular commercial transportation to health care. Serves PA,NY,CT,DEL,VA,MD,WVA,OH,MA,RI,VT,NH,ME and some parts of extreme southern Canada on a limited basis. http://www.angelflighteast.org/ Air Flight NorthEast Provides Free transportation to patients and their families needing medical treatment whose financial resources would not otherwise allow them to do it, throughout the United States http://www.angelflightne.org/ Angel Flights Network, Inc. The Charity assist individuals battling cancer, rare diseases, chronic and terminal illnesses. The pilots provide free transportion, via general aviation aircraft to those needing to travel great distances to get medical care that is not available locally, or local treatment is just not working. There is no cost to the patient or his family. Serving the Florida Straits, and adjacent waters. http://www.angelsofthecaribbean.org/ Angel Flight Southeast Angel Flight Southeast serves the patients in the states of South Carolina, Georgia, Alabama, Mississippi and Florida by Removing transportation as an obstacle to receiving medical or compassionate care. http://www.angelflightse.org/afseweb/ Children's Flight of Hope is a non-profit charitable organization that utilizes volunteers to provide free air transportation, to and from medical facilities, for children with medical needs, while providing support for the families. Serving Eastern United States. http://www.childrensflightofhope.org Hope Air Hope Air is a national charitable organization that arranges free air transportation for financially burdened Canadians in need of medical treatment outside their communities. http://www.hopeair.org/ The Air Care Alliance- This is a nationwide league of humanitarian flying organizations dedicated to community service. They offer free flights for patients. Contact information is on the site. http://www.aircareall.org/ Dreamline- The site offers free flights for children with cancer for vacation or medical purposes. Requests should be made at least 60 days in advance of the trip. The application is available on the internet. http://www.bobiverson.com/dreamline/ Patient Travel-This organization provides information about all forms of charitable, long distance medical air transportation and assists withreferrals for transportation. http://www.patienttravel.org/ |
| Financial/Health Insurance |
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| Health Care Choices- This site provides information on where to get insurance, what to do if claims are not paid on time and getting a second opinion for cancer. The information does not cover every state. http://www.healthcarechoices.org/ Health Resources and Service Administration-The site gives information on the Hill Burton free care program including guidelines for receiving care and facilities, which honor the program. http://www.hrsa.dhhs.gov/osp/dfcr/ National Coalition for Cancer Survivorship- This site gives up to date policy information on issues that are important to cancer survivors. http://www.cansearch.org/policy/index.html Patient Advocate Foundation-Offers financial advice and free legal consultation about insurance. http://www.patientadvocate.org/ Jay's World Childhood Cancer Foundation Inc.- The site offers one of the first scholarships to children who have been diagnosed with cancer. The application is on line. http://www.jaysworld.org/ The Ulman Fund- this site offers scholarship information specific to cancer survivors. http://www.ulmanfund.org/html/scholarship_information.html Cancer Survivors' Scholarship Fund- This organization offers scholarships to cancer patients and survivors. The application is not on-line but the information on how to reach them is on the page. http://www.cancersurvivorsfund.org/ National Transplant Assistance Fund- This organization aids in raising money for transplants and related expenses. http://www.transplantfund.org/ National Foundation for Transplants-This organization assists families with fund raising for the cost of transplants not covered by insurance, and has links to most major transplant centers in the United States. http://www.transplants.org/ Children's Organ Transplant Association- Offers fund raising guidance to families who need to raise money for transplants. They do have some emergency funds available. http://www.cota.org/ The Medicine Program RX Can't Afford Your Prescription Medication? Free Prescription Medicine is Available to those who Qualify. http://www.themedicineprogram.com/ |
| General Info For All |
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| PILLARS OF HOPE - FREE HAT FOR PEOPLE WHO HAVE LOST HAIR DUE TO CHEMO! http://www.pillarsofhope.org/request.html Chemo Angels a volunteer group dedicated to adding a ray of sunshine to the lives of those undergoing treatment for cancer. http://www.chemoangels.com/ Caring Bridge This is a great FREE resource. If you or a loved one are in hospital, they give you a web page to update (easily! - just fill in a form) so you can keep everyone updated. http://www.caringbridge.com/ American Cancer Society Offers many programs for men, women and children. www.cancer.org Angels For Hope Have a free angel sent by mail to someone for hope. In your travels if you know some one that is in need of a caring touch, is sick, dying, has lost someone to death please go to this web site an have a free angel sent to them. http://www.angelsforhope.org Blortland Chemo Health Site- Planet Blortland's Health Dome is a fun healing visualization resource for anyone going through chemotherapy or radiation, plus other cancer patients' stories, cancer links, and a variety of tips from. http://www.blortland.com/ The Cancer Survival Toolbox Building Skills that Work for You is a self-learning audio program that covers topics, or skills, that can help people with cancer meet the challenge of their illness. Additional topics have been added to address the elderly and cancer, the uninsured or underinsured with cancer and caregivers. Family members and caregivers can also use the Toolbox on behalf of a child or anyone else with cancer. Order your free Audiotapes or Compact Discs today! Available in English, Spanish, and Chinese. http://www.cansearch.org/programs/toolbox.htm NCI Publications The National Cancer Institute has booklets, posters and bookmarks available. There is no charge as long as the order is 20 items or less. https://cissecure.nci.nih.gov/ncipubs/ Cancer Survivors This site has general information on cancer, resources, treatments, support, questions, and coping with cancer. Use the glossary to find the definition and pronunciation of medical terms relating to cancer. Lots of information. http://www.cancersurvivors.org/ Cancer Care is wonderful. Lots of information!!! Toll free counseling, caregivers section, contributions, information on types of cancer, section on helping children understand cancer, and tons more!! http://www.cancercare.org/ Cancer News On The Net Current medical information on all kinds of cancer, a very insightful Quote, cancer support groups, clinical trials, and much more! http://www.cancernews.com/ National Foundation for Cancer Research (NFCR) your resource for cancer research and cancer-related information on the Internet. Get your FREE 2002 Calendar! http://www.researchforacure.com/site/PageServer Rest Ministries serves people who live with chronic illness or pain. Very good site!!! Tons of information to help you deal with chronic illness or pain. They also have sections on prayers, articles to read, a caregivers section, life issues, support bulletin boards, pen pals, and resources. http://www.restministries.org/ Cancer Guide is dedicated to helping you find the answers to your questions about cancer, and especially to helping you find the questions you need to ask. http://cancerguide.org/index.html Caregivers Links This site is incredible! Tons and tons of information! This site is a must for all caregivers!!! http://www.oocities.org/Pentagon/Quarters/3006/cglinks.htm ACOR-Here you can browse for an online support group. Tons to choose from depending on type of cancer. http://listserv.acor.org/archives/ Bone Marrow Transplant Support A list of terms and acronyms used in Hematology and Oncology. http://www.bmtsupport.ie/glossary.html U. S. News Magazine-Best Hospitals-Cancer Treatment http://www.usnews.com/usnews/nycu/health/hosptl/speccanc.htm Eating Hints for Cancer Patients: Before, During, and After Treatment http://www.cancer.gov/cancer_information/doc_img.aspx?viewid=8055355f-7885-48eb-9369-7d6ea3e520bb Hope Through The Storm - Sharing Faith, Hope, and Encouragement. Order your FREE video Never Alone: Walking The Cancer Journey With God, and they also have a publication. http://www.iserv.net/~hopestrm/ |
| Bone Marrow Information |
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| Clinical Trial Information |
| Centerwatch Clinical Trials Listing Service! You can use this site to find a wealth of information related to clinical trials, such as a listing of more than 41,000 industry- and government-sponsored clinical trials as well as new drug therapies recently approved by the FDA. Our site is designed to be a resource both for patients interested in participating in clinical trials and for research professionals http://www.centerwatch.com/ Clinical Trials The U.S. National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide patients, family members, and members of the public current information about clinical research studies http://clinicaltrials.gov/ct/gui/c/r Patient Clinical Trials Information List of Questions or Concerns You May Have About Clinical Trials http://www.uchsc.edu/uh/marrow/www/patients/pttrials.htm Pediatric Oncology Group (POG) - One of only two collaborative research groups in the United States dedicated to the treatment of childhood cancers. http://www.childrensoncologygroup.org/ Clinical Trials - National Cancer Institute http://www.cancer.gov/clinical_trials/ Cancer Web Clinical Trial Information http://www.graylab.ac.uk/cancerweb/trials.html American Association for Cancer Research (AACR) - One of the largest organizations for basic and clinical cancer researchers and publishers of Cancer Research in addition to other journals. http://www.aacr.org/ Trial Match - http://www.trialmatch.com/ |
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