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Michele's MonSter-My Story
About My MonSter:
December 7,1999: While most people think of Pearl Harbour Day or D Day,I guess I got my own personal "bomb" dropped. I had been seeing a Neurologist for the past few months before that date in the hopes that I could find outwhy I was having so many headaches and was so fatigued. I figured, running 2 businesses and working 80+ hours a week, maybe it was nothing that some r and r wouldnt cure. I was told they were looking at the possibilities of three things.
- Parkenson's Disease
- A Mini Stroke
- Or a brain tumor
All of these were very overwhelming to hear. Again, I attributed it to being an overworked businesses
owner. Not me I said. I went along with the tests etc which included a visual test, MRI, and spinal.
Meanwhile, I got to the point I couldn't hold my headup from the exhaustion, tremors were starting, and my vision was blurring. December 7,1999, I went for the
the test results. The Dr. who has a wonderful beside manner, had a strange look to his face. Being the kind of person Iam(shoot straight from the hip so to speak), I told him just say it. He called for his nurse, who is a jewel to come in with us. Now Im really wondering. He told me the 3 things they were originally looking for,were negative. Wow, talk about a major sigh of relief! But....and thats what I remember most, was the but.. I had Multiple Schlerosis. Having researched all the other three, I hadn't a clue as to what he was talking about. I remember hearing the words, "no cure", "remission", "shots", and thats about all. Dazed, I headed home to let the family know what I had just been told.
My Mom, who is an R.N. along with the rest of my family cried. She and I started researching to find out
what to expect etc. My daughter, who is 13, was afraid I was going to die. It took alot of reassuring her that I wasnt going anywhere. During this time, my MS was deteriating at warp factor 5.
Christmas, being my favorite holiday was full ofadjustments. And I received things I never dreamed of for the holidays. Instead of the usual sweaters, etc, I received walkers, wheelchairs and pottychairs.This devistated me as I knew without these things I couldnt function. My life, as I knew it, was no more.
December-1999\Jan.2000
For those of you dealing with MS, whether you be a familymember, spouce, or going through it yourself, I hope that you can find some comfort in knowing that your
not alone. I also hope some of the links I have included willhelp you find the information you are looking for.
As for me, Iam learning to adjust and have started theCopaxone shots in the hopes of remission - the hopes
of putting this MonSter to sleep. Good luck and God Bless. If you ever need someone to talk to, Iam always available. As this is one MonSter, you cant fight alone. =0) My icq number is #563255 and you can email me at: fantduhsy@hotmail.com.
***Please note!! These are my own personal experiences with my MS and what does or doesn't work for me may or may not work work for you. ALWAYS take your Dr.'s advice and ask your Dr what medications etc may work for you as everyones MS is different. This is just my personal journey in dealing with this disease.
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