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Michele's MonSter-My Story

About My MonSter:

December 7,1999: While most people think of Pearl Harbour Day or D Day,
I guess I got my own personal "bomb" dropped. I had
been seeing a Neurologist for the past few months
before that date in the hopes that I could find out
why I was having so many headaches and was so fatigued.
I figured, running 2 businesses and working 80+ hours a week,
maybe it was nothing that some r and r wouldnt cure.
I was told they were looking at the possibilities of three things.

  • Parkenson's Disease
  • A Mini Stroke
  • Or a brain tumor

All of these were very overwhelming to hear. Again,
I attributed it to being an overworked businesses owner. Not me I said.
I went along with the tests etc which included a visual test, MRI, and spinal.

Meanwhile, I got to the point I couldn't hold my head
up from the exhaustion, tremors were starting, and my
vision was blurring. December 7,1999, I went for the
the test results. The Dr. who has a wonderful beside manner,
had a strange look to his face. Being the kind of person Iam
(shoot straight from the hip so to speak), I told him just say it.
He called for his nurse, who is a jewel to come in with us.
Now Im really wondering. He told me the 3 things they were originally looking for,
were negative. Wow, talk about a major sigh of relief!
But....and thats what I remember most, was the but..
I had Multiple Schlerosis. Having researched all the other three,
I hadn't a clue as to what he was talking about.
I remember hearing the words, "no cure", "remission", "shots", and thats about all.
Dazed, I headed home to let the family know what I had just been told.

My Mom, who is an R.N. along with the rest of my family
cried. She and I started researching to find out what to expect etc.
My daughter, who is 13, was afraid I was going
to die. It took alot of reassuring her that I wasnt
going anywhere. During this time, my MS was deteriating at warp factor 5.

Christmas, being my favorite holiday was full of
adjustments. And I received things I never dreamed
of for the holidays. Instead of the usual sweaters, etc,
I received walkers, wheelchairs and pottychairs.
This devistated me as I knew without these things
I couldnt function. My life, as I knew it, was no more.

December-1999\Jan.2000

For those of you dealing with MS, whether you be a family
member, spouce, or going through it yourself, I hope
that you can find some comfort in knowing that your not alone.
I also hope some of the links I have included will
help you find the information you are looking for.

As for me, Iam learning to adjust and have started the
Copaxone shots in the hopes of remission - the hopes of
putting this MonSter to sleep. Good luck and God Bless.
If you ever need someone to talk to, Iam always available.
As this is one MonSter, you cant fight alone. =0)
My icq number is #563255 and you can email me at:
fantduhsy@hotmail.com.

***Please note!! These are my own personal experiences with my MS
and what does or doesn't work for me may or may not work
work for you. ALWAYS take your Dr.'s advice and ask your Dr
what medications etc may work for you as everyones MS is different.
This is just my personal journey in dealing with this disease.

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