Hi everyone, in light that the summer season is upon us, I decided to do a "summer theme" on this update. I know I haven't updated for awhile, but with so much going on- yes I'll explain, I haven't had much time to do this update. It's now the end of June 2003 and I'll attempt to bring you up to speed so far. Thank you for your patience to those who visit here frequently!
During the past several months, we have moved. This was something that took awhile to get used to as we were forced to give up our home of 30 years. We have since moved into a smaller house, easier to upkeep, that isnt very far from my mom (a nurse) and dad. Iam now somewhat inbetween my best friend Jo's house and theirs. This mom and dad decided would be good as if I had an emergency, they were very close now. Funny thing is, now I live close to them and yet somehow I can't bring myself to call after 11pm. My husband was working nights until just recently and somehow through all the seizures, accidents, etc I managed to bandage myself up instead of waking someone up at an ungodly hour of the night! During this time, the first aid kit and I become close buddies! This was a very trying time for me as when something would happen I was used to just yelling help! The only person who heard at that time was my lab! I owe him alot of "scooby snacks" for his loyalty and patience.
So now we have new house and Jim took a new job offer back in November of last year. It promised more money and what we thought would be good health benefits. As it turned out, I wasnt allowed coverage by various health networks because I was concidered a major "risk" factor for insurance companies. After spending countless hours filling in applications, (26 turn downs by this point), I was finally accepted by a company. They offered me health care for $1500 a month, $1000 deductable, and 80\20 after that. Well needless to say, we're not the Rockefellers so thats out of the question. Since then, I havent been taking meds as the cost is unreal. SSI says Iam totally disabled, but because I have been a stay at home mom for the most part, I dont have enough work credits to receive health benefits. My husband, they say makes too much money to get the other form of SSI. So, we wait and pray nothing major happens each day. Everyone, including myself is amazed that we as americans can help so many people out, yet fail to take care of our own. With over 30% of us out there without health care, you'd think something could be done. Yes I have contacted local congressmen and senators to no avail.
This lack of insurance didnt seem to be too much of a problem until recently. I noticed over the past few weeks that severe "bloating" was going on in my face and abdomine. I'd start out in the morning my usual size and by the end of the afternoon, grew to the point people suspected I was "due" anyday. It got to the point that one afternoon I went to my mom's and she was horrified. I then called my doctor and they said to come right in. My mother suspected renal failure. (kidney) The doctor was also horrified and shocked I hadnt come in sooner. I tried explaining that due to lack of health insurance and not being rich, my decisions were heavily weighed as to when or what was concidered an "emergency". He too, fearing renal failure sent me promptly to E.R. The doctors had the same question as to why I waited so long to come in. No one seems to understand the costs involved without health care. Anyway after hours of blood work and urine work ups, I was sent home with a catheter and antibiotics, as my bladder isnt functioning. Ive been told to see a Urologist ($300 for first office visit- geeze). Needless to say Iam waiting a bit as it will take awhile to raise that kind of money.
So now we wait. What happens next? Who knows... but Ive learned a very valuable lesson on the perils of health care. Those of you that have it, dont take it for granted and those of you who dont, keep fighting. Call your congressmen and senators. Somewhere the system has to change to protect people like you and me.
Jim, Jo, Mom, Dad and Megan have been my sole inspiration to keep fighting my "MonSter". Now with the challenges and choices, I truly worry about being a burden, both financially and other ways too. I thank God every day for these wonderful people in my life and I hope that when the time comes to make "final" choices, they realise what wonderful people they are and how much I have loved them. Their courage, strength and support far surpass anyones wildest expections. They truly are a gift from God. And I hope one day if I loose my battle, they will continue to "battle" for other people.
With summer upon us, I hope you have a safe and funfilled one. Remember to stop and experience the beauty of a sunset and the warmth of those who care for you. Never forget to tell someone you love them, and never forget to say Thank you! Whatever challenges you are facing, I hope God looks upon you and give you strength and wisdom, knowledge and kidness.
Peace and prayers with you and yours,
I'll update again soon!