Friends are the flowers in life's garden
Welcome! My name is Sue and I have lived with endometriosis for a very LONG time. I was diagnosed with severe endometriosis 15 years ago at the age of 32. My diagnosis took a long 20 years to receive; my symptoms began at the age of 12. I will spare you the math ;0) – 35 years of living with 'endo' as I write this and I continue to struggle with the pain and issues of treatment that so often accompany this disease. While the focus of this site is endometriosis, I also have FMS/MPS (fibromyalgia/myofascial pain syndrome), diagnosed 10 years ago, so you will also find some discussion and sites listed on this topic, as others also deal with both endometriosis and fibromyalgia. I have been educating myself about endometriosis and FMS/MPS since my diagnosis. These are such difficult health problems and I feel that sharing with others and researching as much information as I can, has been key to coping with the many facets of these conditions. I have set up my homepage to help you do the same – offering you a warm and caring ‘home’ for sharing through forums and chat rooms and providing links to other sites that I have found helpful. Please take the time to check out the many links below. There is a wealth of information contained within! Knowledge IS Power! May you all find the path to wellness and freedom from your pain.
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Congress Passes Endometriosis Bill October 1, 2002!
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Congress Passes Endometriosis Bill
Passed October 1, 2002! Read Bill.Endometriosis Research Center PR on Bill
Pass along this PR to spread the word! Help promote awareness!
Center for Endometriosis Care
Doctors Robert Albee & Thomas Lyons (Atlanta, GA)Advanced Laprascopic Surgeons
Dr. Reich (NY)St. Charles Medical Center
Dr. Redwine (Bend, OR)Helena Women's Health
Doctors Andrew Cook & Deborah Metzger (Palo Alto & San Jose, CA)Reproductive Specialty Center
Dr. Koh (Milwaukee, WI)InfertilityPhysician.com
Dr. Birnbaum, interesting information on endometriosise Ob.Gyn. News
Free registration required, excellent source for endo & other articlesAll Things Endo
Interesting/helpful articlesEndometriosis Awareness & Information
Find a Doctor / Rate a Doctor - WebMD
Endo Walk for Awareness
(Sorry, this link no longer works, keeping it, should it become updated)The International Adhesion Society
The National Lupron Victims Network
MENDO
Site on Endo support for the males in our livesImage Library of Endometriosis
These are mostly actual photos of endometriosis - Graphic Images
Find a Doctor / Rate a Doctor - WebMDAmerican Board of Medical Specialties
Medical Tests & Exams
drkoop Drug Checker
This site also has a search for drug and food interactions - just enter all the meds you take to look for interactions
(Sorry, this page no longer seems to exist - please see drkoop site below)Health Square
This site also includes a graphic of the medication,
helpful if you want to be sure you received the correct med from the pharmacy.
Hyster Sisters (hysterectomy support)American Chronic Pain Association
Check Your Medical Records Database
Government Guide to Medical Tips
Fibromyalgia NetworkOregon Fibromyalgia Foundation
Fibrohugs Website
Large interactive FMS siteWebMD Newly Diagnosed FMS Forum
With Kim Jones, RN, PhDNewsletter Articles National CFIDS Foundation
Flu Shots - To Shoot or Not to Shoot
Jim Roache's Fibromyalgia Website
This personal website contains a lot of information on FMS
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