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First Name: :   Rhonda
City & Country: :   canton,ill
Age: :   48
Gender: :   F
Main symptoms; :   LESSIONS IN MOUTH,VANGINA,PAIN ALL OVER BODY,LESSIONS AND ALSO RASHES ON LEGS,ARMS BLEEDING DISORDER,LOST OF IRON.ALSO COLONS FISTULA,
Your personal story;(space is limited to 3 lines) :   JUST FOUND OUT 3MONTHS AGO HAVING A LOT PROBLEMS.PLEASE WRITE LOVE TO HERE FROM PEOPLE WHO ALSO GOING THROUGH WHAT I AM.
Full email address: :   rhonda_siegfried@yahoo.com
Comments or Questions; :   need a friend and just want to exchange stories please write and we can talk.
First Name: :   Ryan
City & Country: :   Chattanooga, USA
Age: :   20
Gender: :   Mail
Main symptoms; :   Neuro-behcets.
Your personal story;(space is limited to 3 lines) :   At 18 we thought it was RA. At 19 i had a stroke and was thought to have a brain tumor. it was Behcets.
Full email address: :   temple3752@bellsouth.net
Comments or Questions; :   
First Name: :   Ken Moran
City & Country: :   Port Alberni B.C.
Age: :   58
Gender: :   male
Main symptoms; :   Have had mouth ulcers,penile and scrotom sores, headache,dizzyness,fainting,cystitis,IBS,ulcers on feet, avm on wrist cant remember them all.NO LIFE.
Your personal story;(space is limited to 3 lines) :   Had this since about 1963 still dont have a diagnosis but am convinced myself. eye problems are getting scarry giant floaters and lots of eye and head pain
Full email address: :   danaseeker@yahoo.ca
Comments or Questions; :   I used to live in kitchener,born in London. I Think this is childhood lead poisoning.Was a mechanic and welder.Any one near me in B.C.
First Name: :   Norma
City & Country: :   Proctor British Columbia
Age: :   41
Gender: :   Female
Main symptoms; :   Gastro - Behcets, Oral/Vaginal ulcers, lesions on the brain,
Your personal story;(space is limited to 3 lines) :   Diagnosed with Crohns for 20 years but as symptoms continued to present differently diagnosed two months ago with Behcets.
Full email address: :   norma_1965@yahoo.com
Comments or Questions; :   Hoping to find some people to talk with so I dont feel all alone
First Name: :   Hayley
City & Country: :   Mississauga
Age: :   20 something
Gender: :   female
Main symptoms; :   mouth ulcers
Your personal story;(space is limited to 3 lines) :   
Full email address: :   
Comments or Questions; :   Has anyone got a good internet link to understand the blood tests my specialist took? I cant find anywhere that explains blood tests C4a, MSH, MMP-9, etc.
First Name: :   Katie
City & Country: :   Moutnain Cyt, USA
Age: :   23
Gender: :   female
Main symptoms; :   mouth sores, genital sores, skin lesions, uveitis, joint inflammation
Your personal story;(space is limited to 3 lines) :   Had symptoms for the past few years, but most doctors thought I was making it up, until I almost went blind. fInally found a doctor yesterday that believed me and made the diagnosis, which was pretty easy because I am a textbook case
Full email address: :   kathleenkcox@hotmail.com
Comments or Questions; :   
First Name: :   Kari
City & Country: :   BC Canada
Age: :   45
Gender: :   Female
Main symptoms; :   Retinal vasculitis
Your personal story;(space is limited to 3 lines) :   Behcets is our working diagnosis, due mainly to elimination of so many others.
Full email address: :   kari_lorraine@hotmail.com
Comments or Questions; :   
First Name: :   Hayley
City & Country: :   Mississauga
Age: :   twenty something
Gender: :   female
Main symptoms; :   mouth ulcers for 4 years straight and overwhelming fatigue
Your personal story;(space is limited to 3 lines) :   worked in a toxic bldg in 2000. bldg since torn down. immune issues first, now this for 4 years.
Full email address: :   hayleyos@hotmail.com
Comments or Questions; :   Anybody found something to stop mouth ulcers? Anyone ever tried Colchicine for it? Any good doctors or naturopaths to recommend? Any help is very much appreciated! Also: A specialist in the US prescribed a medication for cholesterol (cholesteramine) to
First Name: :   Paulette
City & Country: :   Paradsie, NL, Canada
Age: :   35
Gender: :   Female
Main symptoms; :   vaginal/mouth ulcers; headaches; joint pain; vasculitis; extreme fatigue; starting to develop welt like symptoms on my head
Your personal story;(space is limited to 3 lines) :   symtoms for past 7 years; diagonosed 1 1/2 years ago. Tried cholochine but did not work; denied meds (steroids)..not ready! Recently seeing a homeopath (since Nov.)..symptoms are much, much better
Full email address: :   pdcurtis72@yahoo.ca
Comments or Questions; :   Im just reconnecting with this group and reading through your stories. Have hope and keep faith. Cheers! P
First Name: :   Crystal
City & Country: :   Mississauga, Canada
Age: :   35
Gender: :   Female
Main symptoms; :   arthritis, vasculitis, ulcers, autoimmune inner ear disease, vertigo, heamaturia, tissue pain, bi-lateral pulmanary embolisms, trigeminal neuralgia, cluster migraines, pain, stiffness, tumors, cataracts and the list goes on...
Your personal story;(space is limited to 3 lines) :   I have been suffering from an undiagnosed auto-immune/connective tissue disorder for approx. 7 years. About 6 weeks ago I was diagnosed with Behcets and I am now pursuing treatment in this realm.
Full email address: :   justbcs@rogers.com
Comments or Questions; :   I would love any exchange of info, support and treatment. Specifically, I am about to begin Remicade has anyone been down this road?
First Name: :   Mary
City & Country: :   Blaine, MN
Age: :   61
Gender: :   Female
Main symptoms; :   Retinal Vasculitis, Uveitus, Iritis, arthritis, gastrointestional, vaginal ulcers, (no mouth ulcers), CNS, Neuro BD, deaf one ear, hearing loss other, and on, and on, and on!!!
Your personal story;(space is limited to 3 lines) :   I was diagnosed with BD in 1983 when I was hospitalized with Retinal Vasculitis. Ive had various symptoms since childhood...For me, BD has presented itself full-blown symptoms and Neuro BD as well.
Full email address: :   maryburke1@msn.com
Comments or Questions; :   BD Symptoms varies from one person to another as does the treatment. A treatment that works for one, may not work for another...same holds true with BD Symptoms...they come and go...some come back again and again and then leave...then another symptom can
First Name: :   osman
City & Country: :   istanbul/turkey
Age: :   23
Gender: :   male
Main symptoms; :   especially eye problem, ý can say that ý become specialist according to this illness :)
Your personal story;(space is limited to 3 lines) :   roferon, immuran, kolþisin, prednol... ý used a lot of drugs but most effective one is being optimistic, we should see the good sight of our lifes, I believe that one we day we will recover.
Full email address: :   aygoster@yahoo.com
Comments or Questions; :   you can write me and share your feelings, nobody can understand us, we are suffering from the same things, last year ý stayed at hospital for a week, ý didnt loose my hope, and my left eye see %80 now.
First Name: :   Darlene
City & Country: :   Barrie, Canada
Age: :   
Gender: :   
Main symptoms; :   My daughter was diagnosed with Behcets 2 years ago at the age of 12. She had severe genital sores, vomiting, fever, eye pain and joint pain.
Your personal story;(space is limited to 3 lines) :   She has been helped at Sick Kids by Colchicine. It has greatly reduced her symptoms. Im just worried about what she has to look forward to.
Full email address: :   gudskin@yahoo.com
Comments or Questions; :   Does anyone have good remission stories?
First Name: :   Beth Humphrey
City & Country: :   Kamloops, B.C.
Age: :   51
Gender: :   Female
Main symptoms; :   genital & mouth ulcerations. joint & muscel pains, stomack problems, dry or very wattery eyes, neddle like pain in the eye, Brain Fog something awful. The more I learn about Behcets it seems that more of the problems I have had in the past fall into place
Your personal story;(space is limited to 3 lines) :   My Bechets I think goes back a long way. For the past 3-4 years I had Vaginal ulcerations that just would not heal. I was refered to a specialist in Vancouver who did biopsyies and found it was Behcet. Then a lot of other problems just seemed to fall into
Full email address: :   nobbybarney@hotmail.com
Comments or Questions; :   I am very grateful for all the support and help I have been given from the Support Group in Ontario. I feel very comfortable calling Cindy she always seems to know what I am feeling and reassures me that what I am going through others are as well. Its nic
First Name: :   Stephanie
City & Country: :   Fredericton ,NB Canada
Age: :   38
Gender: :   FEMALE
Main symptoms; :   All symptoms too many to mention !
Your personal story;(space is limited to 3 lines) :   I am here along with the wonderful girls who found hope for us all ,Cindy & Tracey.Please email if u need a friend to talk or vent fustrations...
Full email address: :   stephkelly90@hotmail.com
Comments or Questions; :   I will gladly help in anyway possible I know how lonely I felt for so many years and thank GOD we have a place to come together and be with friends in the same boat others dont always understand!Ill help the best I can or listen when u need a friend.
First Name: :   Deborah Kelly
City & Country: :   North Vancouver, Canada
Age: :   53
Gender: :   Female
Main symptoms; :   oral/GI ulcers, fatigue, depression, genital lesions, memory loss (recent), skin lesions/boils, etc., and on and on
Your personal story;(space is limited to 3 lines) :   Started late teens, got worse w/age, 4 years of tests to diag., now have good spec. & Phys. Keep the Faith!
Full email address: :   heartworks@shaw.ca
Comments or Questions; :   I am on disability now ~ in hindsight, wow!!! I am so pleased to have found this site. Thank you for sharing! Deborah :o))
First Name: :   Precious Brown
City & Country: :   Grovetown Georgia
Age: :   41
Gender: :   Female
Main symptoms; :   Joint pain,swelling of ankles,wrist,fingers, Stiff neck sores around eyes sores in mouth sores on buttocks and private area, memorie loss headaches, nausea.
Your personal story;(space is limited to 3 lines) :   had symptoms at age 20 just didnt know why i was always sick, took 5 doctors and at 41 i get diagnosed. what a life!!!
Full email address: :   precious_mason2002@yahoo.com
Comments or Questions; :   Just need to talk with someone about this i just have so many questions
First Name: :   diana
City & Country: :   TX . usa
Age: :   40
Gender: :   F
Main symptoms; :   gastrointestinal problems,mouth ulcers,headaches,dizziness,some skin problems,joint problems, etc.etc.
Your personal story;(space is limited to 3 lines) :   I was dignosed last year on march.and every thing has been going bad for me.even im seeing 3 doctors.
Full email address: :   lopezfamilyandkids@yahoo.com
Comments or Questions; :   I was told by the doctors that i was the only one in tx with this disease. please help, and need support.
First Name: :   lisa
City & Country: :   nottingam, england
Age: :   30
Gender: :   f
Main symptoms; :   without meds oral/genital ulcers,headaches, eye pain, skin problems, fatigue, depression,joint problms
Your personal story;(space is limited to 3 lines) :   thalidomide extremly useful. taking a break from meds to have a baby.
Full email address: :   none given
Comments or Questions; :   nicatine is said to suppress the immune system which is why many sufferers are ex smokers.
First Name: :   suzanne
City & Country: :   oshawa. canada
Age: :   40
Gender: :   female
Main symptoms; :   mouth and nasal ulcers, joint pains, migraines, extreme tiredness, dizziness, ringing in the ears, etc, etc!!!! I think I have forgotten the rest!!!!
Your personal story;(space is limited to 3 lines) :   Everyday lately seems to be a new problem. Finding a doctor has been the most frustrating part!!!! Two of my aunts have this disease.
Full email address: :   prplpt@hotmail.com
Comments or Questions; :   Does anyone have a good eye doctor that knows about this????
First Name: :   myra jones
City & Country: :   canada
Age: :   26
Gender: :   female
Main symptoms; :   eye problems, mouth ulsers, tiredness, cold and hot flases, mood swings a little depretion
Your personal story;(space is limited to 3 lines) :   oon may 24th of 2005 i had ulsers in my mouth and down below it got so bad i had no skin left. i went to a hospital and they sent me home i was topled over in pain in a crotch poosition. My boyfriend then took me to another hospital and they admited me ri
Full email address: :   shorty18128@yahoo.ca
Comments or Questions; :   if anyone needs to talk or is just lonley and have behcets disease they can e mail me
First Name: :   Diane
City & Country: :   Montreal, Canada
Age: :   48
Gender: :   Female
Main symptoms; :   Oral, Genital, Vision, Skin, Arthalgia, G/I, Memory, Speech, etc...
Your personal story;(space is limited to 3 lines) :   I was diagnosed at age 40 after 10years of Test. Lived in Toronto at the time. Had to stop working.
Full email address: :   dianecyr@videotron.ca
Comments or Questions; :   Nice to see that someone did what I always wanted to do. A Canadian Behcets site. WOW
First Name: :   Karin
City & Country: :   S.Warnborough, Hampshire, UK
Age: :   58
Gender: :   F
Main symptoms; :   Oral, genital ulcers, extreme fatigue, joint pains, feeling sick, sore eyes, eye bleed/retina, general feeling like I have Flu!
Your personal story;(space is limited to 3 lines) :   Have had B for 18 yrs, always feeling rough with various symptoms,would love to hear from others.
Full email address: :   karin@cavokat.fsnet.co.uk
Comments or Questions; :   Thanks for a wonderful supportive site and for putting us in touch with other sufferers of this awful disease!!
First Name: :   Taynara
City & Country: :   Recife ,Brasil
Age: :   17
Gender: :   female
Main symptoms; :   oral ulcers,genital inflammations,skin problems,joint problem,patergy,fatigue,intestinalproblems,depression
Your personal story;(space is limited to 3 lines) :   I suffered with these simptoms for one year before fiding the diagnosis.Now I´m fine.I take Ascaridil
Full email address: :   taynara.alves@hotmail.com
Comments or Questions; :   I want to ask you all not to give up, not to stay bad.I know this disease is terrible and it´s hard to keep positive when you are frequently sick.But we all should know that feeling miserable makes the disease worse, it´s scientifically proved.So, please,
First Name: :   Eleanor
City & Country: :   Aberystwyth Wales
Age: :   58
Gender: :   female
Main symptoms; :   mouth ulcers, arthritis, fatigue, skin lesions, DVT, memory loss, pain and concentration problems.
Your personal story;(space is limited to 3 lines) :   I lived in Canada for 25 years and never had symptoms! Seem to have returned when I came back.
Full email address: :   e.schroder@talk21.com
Comments or Questions; :   glad I came accross your page, whereabouts in Ontario are you? I lived in Barrie, Ontario.
First Name: :   Ginger
City & Country: :   Willits, CA USA
Age: :   58
Gender: :   F
Main symptoms; :   oral ulcerations fever fatigue genital ulcerations uveitis joint pain nausea
Your personal story;(space is limited to 3 lines) :   I was diagnosed more than 20 years ago. Currently, I am on my 2nd month of immuran (azathioprine).
Full email address: :   gbread@willitsonline.com
Comments or Questions; :   Is there a chat room? Is there access to current research? Are there physicians on board that can answer questions?
First Name: :   shelley
City & Country: :   hengoed, wales
Age: :   35
Gender: :   female
Main symptoms; :   permimently sick, diahrea, never ending vomiting, dry eyes& mouth confusion, major memory loss,inabiity to stand extreme fatigue,like ive been on the pop for ages!
Your personal story;(space is limited to 3 lines) :   i have sle-8yrs, syrgeons and reynolds 3yrs and now the drs think bachets too.im only 35help!
Full email address: :   shelleyuk69@yahoo.co.uk
Comments or Questions; :   thanks, had to look up my new found friend (bachets), i do seem to be collecting them hehe gotta laugh of you go crazy!!!!!
First Name: :   Eric
City & Country: :   Canada
Age: :   28
Gender: :   Male
Main symptoms; :   fatigue, headache,oral and genital ulcers,skin lessions, joint pain, gastro intestinal problems, loss of vision (uveitis)
Your personal story;(space is limited to 3 lines) :   
Full email address: :   zutcom@hotmail.com
Comments or Questions; :   Thanx for your support
First Name: :   Suzanne King
City & Country: :   Haverhill, Ma. US
Age: :   42
Gender: :   female
Main symptoms; :   fatigue, headache, stiff neck, nausea, vomiting, oral and genital ulcers,skin lessions, joint pain, gastro intestinal problems.
Your personal story;(space is limited to 3 lines) :   
Full email address: :   sooxkiii@msn.com
Comments or Questions; :   In 2003 , I took a bottle of extra strength Tylonol because I couldnt take being sick any more. This is no way to live.
First Name: :   chastity
City & Country: :   Texas
Age: :   31
Gender: :   Female
Main symptoms; :   moth ulcers, genital ulcers, dizziness, fainting, memory loss, loss of vision, headaches, fatigue, alot more....
Your personal story;(space is limited to 3 lines) :   I was diagnosed with Bechets in 2005.
Full email address: :   chastity_mdy@yahoo.com
Comments or Questions; :   Will I ever accept this and learn to deal with it?????
First Name: :   Angela
City & Country: :   Toledo,USA
Age: :   31
Gender: :   female
Main symptoms; :   vaginal ans oral ulcers.Severe abdominal pain
Your personal story;(space is limited to 3 lines) :   I have been diagnosed with Lupus and Croans which I now find out I have neither.I also have been labeled drug seeking when I go to the ER. I have severe abdominal pain,mouth and vaginal ulcers. The doctors say they learn about it in med school but never s
Full email address: :   cmny@buckeyeexpress.com
Comments or Questions; :   
First Name: :   Pat Kovalchick
City & Country: :   HELENA-USA
Age: :   57
Gender: :   female
Main symptoms; :   I have traveled from Alabama to London in the last 24 hours. Now I have a flare up with severe pain all over my body. Neck and head are killing me. I have been in the bed for two days, ever since we reached London. It was an 8 hour trip and seem my body c
Your personal story;(space is limited to 3 lines) :   Took forever to get dignosed after years of lesions in many places.ai take lots of medications now and the flares are further apart than before.
Full email address: :   profit003@aol.com
Comments or Questions; :   Thank you for anything you do to help the Behcets community.
First Name: :   Loretta
City & Country: :   Palestine Tx, USA
Age: :   40
Gender: :   Female
Main symptoms; :   Mouth Ulcers, Chest pains, Joint pain, Headaches (behind eyes). Numbness hands and feet, etc. etc.
Your personal story;(space is limited to 3 lines) :   Began noticing some symptoms age 27, Progressed tremendously in late 30s.
Full email address: :   agapehillranch@aol.com
Comments or Questions; :   
  
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