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Name: :   sarah nesbitt
City & Country: :   darlington co.durham england
Age: :   27
Gender: :   female
Main symptoms; :   oral and genital ulceration
Your personal story; :   ive suffered oral ulcers from the age of 3mth old.genital ulcers followed in my early teens.luckily symptoms .have seemed to have subsided the older i get.but darent speak too soon.but i do unfortunately suffer from recurrent crops of mouth ulcers which a
Full email address: :   
Comments or Questions; :   the only product i find that helps my oral ulers is adcortyl orabase.is there any other products better than this?
Name: :   andrea
City & Country: :   grande cache alberta
Age: :   23
Gender: :   female
Main symptoms; :   ihave many ulcers and skin lesions all over my of body, mouth , scalp,genitals...
Your personal story; :   It all started when I was 18 and first got pregnant with my first child, my foot they thought was athletes foot. although it was not. Five years of suffering and they finally figured it out. now iam prego with my third child, and am unable to get proper t
Full email address: :   ejandrea@yahoo.ca
Comments or Questions; :   Is there any kind of cream that can take the burning sensation off of a closed lesion?
Name: :   Jeannette Callen
City & Country: :   Crewe, cheshire UK
Age: :   50
Gender: :   female
Main symptoms; :   now I have CNS involvement and I am struggling to keep it from being deblitating.
Your personal story; :   I have suffered with Behcets since I was 15 years old (when the initial onset occurred) however, I was diagnosed with Lupus in my 30s and was not properly diagnosed or treated with the Behcets until 2003. I have a lot of helpful advice (I believe) for oth
Full email address: :   travels_by_moonlight@yahoo.com
Comments or Questions; :   
Name: :   carol Paul
City & Country: :   UK
Age: :   42
Gender: :   female
Main symptoms; :   everthing this BD throws at me apart from the eyes, which I feel I am so lucky.
Your personal story; :   Well here goes, after having my daughter 8 years ago, I noticed I was having a lot of mouth ulcers and a lot of joint pain. As you do went to my GP, he siad most proberly run down after having a baby. But a few months later noticed I was having genital ul
Full email address: :   carol.paul1@ntlworld.com
Comments or Questions; :   I would like to know if neuro BD stays with you for the rest of your life or just a thing that might pop up now and again, or will I be on steriods for ever?and any more info or neuro BD. I do belong to the yahoo support group and also I am a chat angel.
Name: :   Wendy
City & Country: :   Summerville, SC
Age: :   24
Gender: :   Female
Main symptoms; :   oral ulcers, skin lesions, genital ulcers, fatigue, horrible joint pain, extreme sensitivity to light, folliculitis, gynecological problems.
Your personal story; :   I have recently been diagnosed. After tons of different docotors & after being told it was all psychosymatic , I finally found a doctor who was willing to listen to years of history and put it together. I have all faith in him at this point! God Bless him
Full email address: :   drespw98@aol.com
Comments or Questions; :   Anyone who wants to talk please feel free to write. I would love to hear from you and could use all the support I can get!
Name: :   Jacqui
City & Country: :   Bay Area, California, US (originally from Alberta, Canada)
Age: :   26
Gender: :   Female
Main symptoms; :   Fever, joint pain, mouth ulcers, eye symptoms, pathergy, rashes, also have Crohns Disease.
Your personal story; :   Ive been ill without diagnosis since I was in High School. I finally found a rheumatologist that understood my problems (Ive been referred to my share of psychiatrists as well, even with Crohns as a debilitating disease).
Full email address: :   caljacqui@hotmail.com
Comments or Questions; :   What a wonderful site! Im happy to read that there are others out like me (a lot of Canadians with Behcets..including me...is this normal?) Thank you for all this info!
Name: :   Becka Thomas
City & Country: :   Salt Lake UT USA
Age: :   26
Gender: :   Female
Main symptoms; :   Mouth, genital & eye problems. Brain lesions, arthritis, stomach ulcers. Fatigue, dizziness, memory loss. I think I have had just about all that I can have.
Your personal story; :   I was diagnosed at 18 after years of problems. I married the man I was dating when I found out. I have 3 beutiful children. 5, 3, & 1 years old.
Full email address: :   becka@networld.com
Comments or Questions; :   I know it is hard to live with but I just try not to think about it to much. Somedays are harder then others. But I have hope that things will get better in the future.
Name: :   Helen
City & Country: :   Teesside England
Age: :   
Gender: :   
Main symptoms; :   
Your personal story; :   CONT:...Vulval ulcers,was in hospital with a catheter. This is her 3rd flare of gentital ulcers in a year. She has only had 2 full weeks at school since last June and had to have a home tutor
Full email address: :   disalvohelen@hotmail.com
Comments or Questions; :   
Name: :   Helen
City & Country: :   Middlesbrough Teesside England
Age: :   38
Gender: :   Female
Main symptoms; :   Reaccurent mouth ulcers, genital ulcers, skin problems, stomch disorder which they cant find reason for, headaches.
Your personal story; :   Hi, it is actually my 14 year old daughter who has suspected Behcets. She has always had mouth ulcers for as long as i can remember! When she was about 11 she had a genital ulcer. Last year June 2003 was when she bacame really ill and had dreadful vulval
Full email address: :   disalvohelen@hotmail.com
Comments or Questions; :   Thankyou for your web site. Bless you x
Name: :   elaine
City & Country: :   pity me durham england
Age: :   33
Gender: :   all woman
Main symptoms; :   to blinken many
Your personal story; :   i had the pleaseure of meeting tracey that helps on this site this march and shes now my bd sister we even got it on our ankles lol thanks tee youre the best
Full email address: :   behcetsdurham@hotmail.com
Comments or Questions; :   well donte to you all keep it up x
Name: :   colin
City & Country: :   durham uk
Age: :   u know that
Gender: :   male
Main symptoms; :   got none the wife has them
Your personal story; :   
Full email address: :   thecaretacker@aol.com
Comments or Questions; :   any one who sufers along with the sufferer needs to chat to someone who understands the preasure the illness causes to the imidiate family members as this can be as bad as having the illness themselves
Name: :   Crystal Monique Hartmann
City & Country: :   Houston, Tx USA
Age: :   27
Gender: :   female
Main symptoms; :   thraot, genital lessions, dx w/shingles 4 times in one year. Always a general feeling of being sick. Pain all over body about every two weeks. Out of no where severe allergic reactions to things. Always tired. All started w/pregnancy
Your personal story; :   I feel like I dont have one yet as doctors are still trying to find out what is wrong with me. But, at least i am getting to where I can TELL people, ther is actually a problem, its not all in my head and I am not lazy
Full email address: :   moniquesmystique@yahoo.com
Comments or Questions; :   Can you tell me what the criteria is for dx this?
Name: :   Joan Pitman
City & Country: :   Yarmouth, Nova Scotia
Age: :   
Gender: :   female
Main symptoms; :   eye ulcers; tender welt-like bruises on the legs; genital ulcers; intestinal ulcers; fatique
Your personal story; :   My daughter, now 27 years old, was diagnosed with Chrohns disease about 4 years ago, but has since that time has also had the above symptoms. The doctors have mentioned that she may have Behcets, because of her ulcers in other areas besides her bowels. Sh
Full email address: :   rickpitman@yar.eastlink.ca
Comments or Questions; :   What do you think of her symptoms?Any advice?
Name: :   Sandy Robinson
City & Country: :   Surrey BC
Age: :   55
Gender: :   Female
Main symptoms; :   mcuous ulcers on and off dvts uler in my ear canal and onto my ear drum, many vascular problems nuerobehcets vaginal and mouth ulcers no eye involvment to date although I have cataracts from the prednisone.
Your personal story; :   I took many years to get diagnosed even then I took things into my own hands and went to the UBC medical library and did some research about the symptoms I was having at the time. When I found what I thought might help my doctor I photocopied the articles
Full email address: :   sandy.l.robinson@shaw.ca
Comments or Questions; :   None for now
Name: :   steph
City & Country: :   coventry england
Age: :   40
Gender: :   female
Main symptoms; :   I have got Behctes which ive had since the early 1990s and my symptoms are mouth ulcers which are very big and the last for weeks on end and i suffer with joint pain as well and also my eyes suffer they get very dry and very sore. Also the Behcets have af
Your personal story; :   Like ive said i have had Behcets since 1990S. I had a Mouth Ulcer for 3 Weeks and had to have a Boipsy taken and the report came back as Behctes up untill then i had not heard of it at all i have now been taken off the steroids and im on another drug to t
Full email address: :   tigerse3@hotmail.com
Comments or Questions; :   I want to say a BIG THANKYOU for your Web Site its good that we can support each other through all the ups and downs of life . God Bless you all . love and Hugs Steph
Name: :   Kayti
City & Country: :   Indiana - USA
Age: :   26
Gender: :   Female
Main symptoms; :   Migraines, recurring apthus ulcers in mouth, throat, breasts, vaginal and rectal areas. Eye problems, arthritis, fatigue, fatigue and more fatigue
Your personal story; :   I was diagnosed in 1999 at the University of Iowa Medical Center. I started having symptoms when I was 15.
Full email address: :   dustin.kayti@insightbb.com
Comments or Questions; :   
Name: :   Shana Bilfield
City & Country: :   Cleveland Heights, United States
Age: :   24
Gender: :   Female
Main symptoms; :   Vaginal ulcers, fevers, chronic fatigue, arthritis, numbness/tingling in hands & feet
Your personal story; :   Hi! I came across this website on a desperate search for a support group. I am 24 years old, diagnosed with Behcets at 20 yrs., but have been chronically ill since I was one & a half years old. My disease has progressed from mimicking Familial Mediterrane
Full email address: :   anashjewelry@hotmail.com
Comments or Questions; :   I would love to be in touch with others/someone in my vicinity who has Behcets. Thanks, Shana
Name: :   Monique
City & Country: :   Montreal (CAN)
Age: :   53
Gender: :   female
Main symptoms; :   
Your personal story; :   
Full email address: :   
Comments or Questions; :   
Name: :   Mary Burr
City & Country: :   Union Grove USA
Age: :   40
Gender: :   Female
Main symptoms; :   headaches,depression, intestional problems,skin lesions,arthritis,chronic pain
Your personal story; :   
Full email address: :   mburr@whitesales.com
Comments or Questions; :   Is there any medication that I can take that will help everything?
First Name :   Monica
City and Country :   romania
Age :   32
Gender :   female
Main symptoms :   all of them
Your personal story :   my cousin have the disease...i wanna help her because i dont want her to die
full email address :   beautyladyy_11@hotmail.com
Comments or Questions :   evrything helps ...and you are the best with this site...thank you
First Name :   Jo
City and Country :   Northampton, U.K.
Age :   17
Gender :   Female
Main symptoms :   Ulceration, depression, fatigue, a lot of Bowel problems (I.B.S.) and have been told I may have Polysystic ovaries just to top it all off!
Your personal story :   Diagnosed when I was 7 by a specialist at Great Ormond St Hospital, London, taking Lansoprazol and Mebeverine for I.B.S. and Colchicine and Azathioprine for the ulcers.
full email address :   bohemian_rainbow_jo@hotmail.com
Comments or Questions :   Thank you so much for this site, it helps to know we arent alone, best wishes to you all.
First Name :   Frank
City and Country :   LeSueur, USA
Age :   63
Gender :   male
Main symptoms :   Stomatitis, Genital lesions, Lesions on right lower foot, under the neck, and two on my butt
Your personal story :   Symptoms started at age 52. Diagnosed finally after 10 years. Told it was herpes. Cultures indicated no herpes virus of any sort. I believe my disease is caused my intense stress from my living style. Perdnisone, cholchicine so far have helped control out
full email address :   fjebert @mnic.net
Comments or Questions :   I have multiple degress in the Biochemical Sciences and active in many medical applications. I am open to sharing E-mail and discussions.
First Name :   keith
City and Country :   shaffer
Age :   46
Gender :   male
Main symptoms :   mouth sores,joint pain,fatigue,and so on
Your personal story :   I guess like most I had problems for a long time and I was one who almost never went to the drs, I ould just let it pass,I thought I was healthy and used to lift wights and run and so forth.Until the pains started to get worse and the pain got worse,the f
full email address :   kshaffer57@suscom.net
Comments or Questions :   Is there any real hope with this
First Name :   Eli
City and Country :   Orillia Ontario Canada
Age :   42
Gender :   f
Main symptoms :   multi system issues
Your personal story :   
full email address :   oneamazingworld@sympatico.ca
Comments or Questions :   love the site set up - best wishes to all
First Name :   Carl
City and Country :   London Ontario Canada
Age :   49
Gender :   Male
Main symptoms :   Joint pain,stiffness,blurred vision,red eye,tongue and mouth sores,genital sores,fatigue,light headed.
Your personal story :   5 yrs. ago. SEVERE joint arthritis, new area every day. Red eye,blured vision,tongue mouth penis sores.Red dots on feet. Genetal sore.Bad body smell.New symptom each day.Diagnosed finally. Hospitalized 3 days.Biopsy on Groin sore. Prednisone instant short
full email address :   
Comments or Questions :   Canada Pension Possibility? Memory Problems?
First Name :   Pauline
City and Country :   Bedfordshire England
Age :   56
Gender :   Female
Main symptoms :   Genital and Mouth Ulcers, depression, fatigue,and visual imparairment
Your personal story :   Have suffered for 33yrs have seen many doctors and tried many (cures) with not much luck!! have just become friends with a fellow sufferer whom I am hoping to meet up with soon, that has been my biggest saving grace so far, to have someone to understand i
full email address :   pd.shadbolt@ntlworld.com
Comments or Questions :   So glad to have found this site
First Name :   Norma
City and Country :   Guelph
Age :   57
Gender :   Female
Main symptoms :   ulcers, arthritis in knees and ankles, vasculites
Your personal story :   I started having bad mouth ulcers about 12 years ago, then about 6 years ago had a bad breakout,but the doctors couldnt figure things out. Didnt have another major flare up for three years then had a couple bad ones in a row..That is when my knees and ank
full email address :   normacyca@hotmail.com
Comments or Questions :   
First Name :   Ellie
City and Country :   Canning Canada
Age :   
Gender :   F
Main symptoms :   Nose and mouth and genital sores, Erythema Nodosum, confusion
Your personal story :   
full email address :   Ellie@REMOVEiiStudio.com
Comments or Questions :   
First Name :   Devorah
City and Country :   Thornhill, Ontario. Canada
Age :   43
Gender :   Female
Main symptoms :   Severe headaches (Neuro-Behcets), Joint Pain, oral and genital ulcers, lung problems, G.I.T. problems, skin leasons, eye problems and the list goes on...
Your personal story :   I was diagnosed when I was 19, I have had periods of remission that lasted years but I have also had flares that have lasted for years and years and years it seems but I think that this disease has made me stop and smell the roses as it were! I try to enj
full email address :   jacobsd@pssnet.com
Comments or Questions :   Go Leafs!!!
First Name :   Donna
City and Country :   Cambridge, Ontario, Canada
Age :   64
Gender :   F
Main symptoms :   
Your personal story :   
full email address :   
Comments or Questions :   Have similar symptoms but not yet diagnosed.
First Name :   Grace
City and Country :   Barrie,Ontario
Age :   46
Gender :   female
Main symptoms :   
Your personal story :   Cindy is my niece
full email address :   evita_h2@hotmail.com
Comments or Questions :   Cindy is amazing
First Name :   Joyce
City and Country :   Granger, IN
Age :   46
Gender :   Female
Main symptoms :   Skin and oral lesions, fatigue, joint pain
Your personal story :   Diagnosed in 1991 and was glad to have a name for it. All those doctors and I finally found one who knew immediately the I had BD.
full email address :   jacer75@yahoo.com
Comments or Questions :   
First Name :   Joanna
City and Country :   Brampton, ON
Age :   29
Gender :   female
Main symptoms :   My best buddy has it
Your personal story :   
full email address :   jcox01@rogers.com
Comments or Questions :   I think what you guys are doing here is an excellent source of contact for other sufferers, Keep up the great site, Luv ya Jo XOXOXOX
First Name :   Eli
City and Country :   Orillia, Ontario Canada
Age :   41
Gender :   F
Main symptoms :   vasculitis, skin lesions, cankers, joint pain, fatigue,
Your personal story :   Diagnosed un 2001 -
full email address :   oneamazingworld@aol.com
Comments or Questions :   
First Name :   Kristen
City and Country :   Ashland, OR USA
Age :   38
Gender :   F
Main symptoms :   Oral ulcers, vision problems, skin rashes, arthritis
Your personal story :   
full email address :   klou2u@yahoo.com
Comments or Questions :   
First Name :   Barbara Sullivan
City and Country :   San Diego USA
Age :   51
Gender :   Female
Main symptoms :   Neuro
Your personal story :   
full email address :   bas_sandiego@hotmail.com
Comments or Questions :   Just diagnosed. First symptom 25 years ago!
First Name :   Rhonda
City and Country :   Bland Missouri USA
Age :   45
Gender :   Female
Main symptoms :   bone and joint paint at this time
Your personal story :   Started in 1975 but was not diagnosed until 1993.
full email address :   rdrewel@socket.net
Comments or Questions :   
First Name :   Karen
City and Country :   Cambridge, Canada
Age :   25
Gender :   Female
Main symptoms :   Ulcerations, Uveitis, bowel problems, swollen joints, Pathergy and Vasculitis.
Your personal story :   I was diagnosed at the age of 21. In the months prior to my diagnosis I had gone to the doctors complaining of oral and genital ulcerations combined with blurry vision and severe abdominal pain. This illness has been very devastating, as I am still trying
full email address :   smithkj@sentex.net
Comments or Questions :   
First Name :   Brenda
City and Country :   Chester, VA USA
Age :   39
Gender :   Female
Main symptoms :   Oral ulcers, genial ulcers, Erthyema-nodosum, Pseudofolliculitis, Papulopustular lesions (basically everything that can attack my skin!), and arthritis.
Your personal story :   I became symptomatic on a military rotation to Bosnia where I first developed over 100 painful oral ulcers on two separate occasions. I couldn’t eat, sleep, or drink. Even breathing hurt. I held a position that required me to conduct daily briefings and I
full email address :   bmayes@Access4less.net
Comments or Questions :   I would be interested in starting a support group in the VA area with anyone who is interested.
First Name :   Ellie
City and Country :   Canning, Canada
Age :   53
Gender :   Female
Main symptoms :   Nasal and mouth etc. ulcers, confusion, painful eyes, Erythyma Nodosum, Thrombo Phlebitis
Your personal story :   Was misdiagnosed for two years until a gynae suggested BD. This is still ongoing, as I have seen a Rheumatologist, Dermatologist, Eye doctor, Neurologist (no report from him) and the Gynaecologist.
full email address :   Ellie@REMOVEiiStudio.com
Comments or Questions :   Really find the information helpful. What would we do without the internet and this type of site?
First Name :   Chelsea
City and Country :   Vancouver, Canada
Age :   32
Gender :   Female
Main symptoms :   Apthous stomatitis / GI ulcers
Your personal story :   too long!
full email address :   chelsea_linkletter@shaw.ca
Comments or Questions :   Im having a difficult time finding an immunosuppresant that I can tolerate. Any homeopathic suggestions?
First Name :   Rhonda
City and Country :   USA
Age :   25
Gender :   Female
Main symptoms :   Neurological
Your personal story :   
full email address :   
Comments or Questions :   Thank you for all of your support.
First Name :   Jane
City and Country :   Minneapolis,MN,USA
Age :   43
Gender :   Female
Main symptoms :   Headaches and Joint Pain
Your personal story :   Mother of 2 girls.Had a stroke with the dis. 8 years ago. Living on my own.Divorced 2x and love being single.Was told I never would.
full email address :   janewhite@comcast.net
Comments or Questions :   What do you take for headaches? I get them bad and cant find anything to help.
First Name :   Hammad
City and Country :   Sahiwal, Pakistan
Age :   29
Gender :   M
Main symptoms :   eyes
Your personal story :   
full email address :   ham_na@yahoo.com
Comments or Questions :   
First Name :   trina
City and Country :   bradford.....United Kingdom
Age :   38 now.....boo hoo
Gender :   was told I was female
Main symptoms :   chronic brainitus
Your personal story :   you know t
full email address :   
Comments or Questions :   
First Name :   Stephanie
City and Country :   Fredericton,Canada
Age :   34
Gender :   female
Main symptoms :   all
Your personal story :   Hi Im 34 mother to one beautiful 7 year old.I have suffered many years of this ghost with no name until 3 years ago.I have good days and bad.My ulcers arent as bad as they used to be . I take alot of medications for different symptoms and wish to be off o
full email address :   stephkelly90@hotmail.com
Comments or Questions :   What do others take for medications?
First Name :   Gail
City and Country :   
Age :   
Gender :   
Main symptoms :   
Your personal story :   
full email address :   
Comments or Questions :   I read your story today in the Times and wanted to Congradulate you and tell you to keep up the good work. We need others like you two ladies to help others!
First Name :   elaine
City and Country :   durham united kingdom
Age :   32
Gender :   female
Main symptoms :   ulcers deprssion skin problems joint problems ect
Your personal story :   mother off 4 dx last year having very hard time coming to terms with it and having to give upwork would love to hear from anyone with bd
full email address :   babetocheckout@aol.com
Comments or Questions :   brill site good work
First Name :   Sheri
City and Country :   Milton, Canada
Age :   29
Gender :   Female
Main symptoms :   Ulcers, Pain, Skin Problems, etc
Your personal story :   I was hospitalized January of 2002. They thought Chicken Pox then Menengitis, then Herpes, then Lupus, then finally Behcets. My symptoms were, skin leisions of all kinds, extreme fever, joint pain, chest pains, loss of concentration, fatigue, ulcers, etc.
full email address :   sgauld@loopspin.com
Comments or Questions :   I am so happy that there is finally a group in Ontario. If there is anyway that I can help please tell me.
First Name :   Vivian
City and Country :   Fayetteville, NC USA
Age :   38
Gender :   Female
Main symptoms :   ulcers, pain, fatigue
Your personal story :   I have had mouth ulcers for a few years. But I had surgery last year and it all fell apart after that. I had fever and a mouth and throat few of ulcers by the end of the week and I had surgery on Mon. I developed the worst genital ulcers you could (not) i
full email address :   thorpesclean@aol.com
Comments or Questions :   
  
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