Elizabeth's Story





I have been fighting this endo monster for four years and counting. I am glad to get the word out. Women or girls if you are hurting and thinking you are going crazy, please get to the ob/gyn now. This endo monster has been kicking women for over a hundred years. We need to stand tall and say we will not rest till there is a cure.

As a Teenager for four hours after the period started I felt like someone was twisting my organs. It would always straighten out. I knew that there was something wrong with my left ovary and I would never have kids. When I moved in with my boyfreind who I am married too I noticed that my periods would come with sharp rectum pains that you could not walk, sit or lay. It was awful. Every month it got worse. It got to the point I went and saw my family doctor. She could not find nothing wrong.About a year later I had pains around my left ovary and it was not my time of month. I called my family doctor back and told her what was going on at first she thought I had a pelvic infection and gave me a shot. After a few days it got worse. I called her again and told her what was going on she told me to go to the ER asap. I called my husband from work and he took me. What A nightmare that turned out to be. They stuck a cather up my bladder and forced water up my bladder, did a ultra sound just to find out that I had cysts break open and that was normal for my age. I figure it would go back to normal but it did not.

So my family doctor got me into seeing a specialist for endo. I went to see him and few months later I had endo. I am glad they found it as fast as they did. I was dumb, I didn't know what endo could do. I went to ever doctor to find another answer and never did. Thanks to this diease I have bad ears, had my toe nails removed from fungus and have IBS too. I do not get colds any more.

This women of twenty-five has done two studies on endo. They have had me on a spray up the nose everday for six months called Lupron and that includes blood works,EG and bone scans. Just to find out that they gave me water for four months. I think they did that to see if I was nuts. Then the pains came back. I had to have another scope which they did not remove anything because the lupron company wanted to make sure you had endo, were a certain size, and bone desinty. I went on a lupron shot ever three months. You talk about hell, night sweats, hotflashes, and the heart would speed up. I was so glad that was over. Those caluim pills they made me take plus all the calium I could eat tore my stomach up. My bone lost is not a lot but now no more lupron. They did pay me 300 dollars for doing the study. There was only 48 women in the USA that was chosen to do the study.

Eight months later I was in so much pain and the doctor was a jerk. Told me there was no need to do any more scopes because my problems were from IBS. I filed a complaint on him and they begged me to come back and talk to him. I did and he decided to let me have my way and did the third scope a day later. 15 months earlier I was in stage one. After the third scope I had scar tissue on the rectum, vagina and the left ovary. He had to go in with a knife to cut some of the endo out because it was so deep. He came in and talk to me in recovery but I was half a sleep but he never did that before. He told my husband stage 2. I called up his clinic to find out what he did He personal called me and told me he was sorry and that he was surpise to find the endo had moved so fast.

He belives that I should get a year of no endo. I am not holding my breath on that. I am on depo-provera shot but have decided not to do it any more. I seem to bleed for weeks on end. Now I am facing worse endo and no medicine to slow it done. At the moment I am pain free. It sure expensive to be pain free. I hope soon I will be able to make love to my husband. All those medicines do not help your sex drive.


Return back to the page here


I unfortunately do not recall where the background for this page came from. If you know, please email me and let me know. The other graphics on this page came from: